marxm0703 - MARXM03
MARXM03

Falling back into my MCR era Michael-20-He/Him Trans-Ace-Panr pots-osdd having fun at all times Stressed, Depressed, and Well Dressed (cause who can hate sweatpants?)

481 posts

Disability Isn't "adult".

Disability isn't "adult".

The fact of the matter is that, even though they would just love to deny it, able-bodied people think that disability is a sign of your age. They avoid acknowledging any sign that a child could have a physical disability, even if it is screaming in their face. An 8 year old is in pain after failing the pacer test and complains that they have shin splints, the bridges of their feet hurt, they feel dizzy. And their able-bodied PE teacher tells them, "that means you don't run enough, those things will go away if you work out more often." And that child will believe them. That kid will internalize that. "All of this pain I feel is my fault. I run around the playground with my friends, but maybe it's because I sit down more often than them. If my shins hurt when I run, but running will get rid of that pain, what am I supposed to do?"

And it takes years of assuming that all of this pain was normal, everyone would experience this if they were lazy, for them to finally go to the doctor. Years of avoidable pain. Years of feeling lazy. And that kid, the child that never learned that the pain could've been relieved, will never forgive those teachers. And those teachers won't give a shit. Of course they won't, why would they? They told a child that they were normal, told a kid that it's something that can be fixed easily with the very exercise that hurts them, that teacher was clearly in the right. Ehlers Danlos Syndrome. A connective tissue disorder that explained everything that they had experienced, down to the smallest thing, even the constant joint popping every time they move. The shooting pains that they would get in a random joint for weeks on end which would randomly just dissipate.

At this point, I don't know why I'm writing this. Maybe I wish I could go back, tell that kid that he should tell his mom about the pain in the bridges of his feet. Something that would've helped me in the long run. Maybe I should've told my doctor about my "zombie foot", where I turned my leg 180 degrees around while standing in place.

Because of those teachers, I have to relearn my own limits, understand that if I'm in pain and there's a way to relieve some of it, fucking do it! I know that I've grown as a person since I learned about my disability, but now I'm seeing the rage I never released and I wish I had half as filthy a vocabulary when I was in 3rd grade as I do now! Even just a good "fuck off" would be nice. Knowing that I didn't just take what they were saying as fact. For anyone who read through all of this, you're fucking awesome, and there isn't a person who deserves chronic pain. Nobody "deserves" it. No one is "at fault" for a chronic disability. I'm not disabled because I'm lazy. I have to rest and heal because I'm disabled. Because I'm human!

I'm going to use my wheelchair in public because I know that my hips stop hurting when I use it. I'm going to sit down if my feet hurt because I know there might be less pain later if I take care of myself. Self care shouldn't be something you shame people for, and to anyone who thinks that the validity of my disability depends on how much pain I'm in, fuck you. Fuck you, go learn basic human empathy and get back to me with an apology. I have nothing to prove to strangers, I'm living my life to the best of my abilities, and that means using my wheelchair. Thank you guys for reading, have a fucking awesome day, and drink some water.

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1 year ago

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1 year ago

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