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POTS and hEDS girly here!!

yeah that’s very similar to what I went through/still go through. If you’re younger and in the US, try getting into the children’s mercy in Kansas City. They do diagnoses for a lot of genetic conditions there. You might want to look into other hyper mobility disorders, but it sounds a lot like EDS

Hello chronic conditions side of Tumblr.

I've been experiencing many symptoms for a very long while (technically all my life but obviously I didn't start paying attention until I was like 12-13) and I don't want to self diagnose but I do know it might be a key part of getting a formal diagnosis, I'm going to list the main symptoms and tell you what I through my research and various legit symptom checkers have concluded I might have.

I am hyper mobile, the orthopaedic told me that when I was like 5 but I never got a formal diagnosis because my parents didn't think it was relevant, however to this day my hip does something weird sometimes when I walk and then hurts afterwards and I have to overstretch it so it stops hurting as much, all of my articulations pop, I've had chronic low back pain since I was like 9 and back pain in general since I was 11, my injuries have a thought time scarring and they scar badly, my hands and feet are generally cold and peripheral blood circulation is kind of a mess, my skin is sensitive and reactive and I get cuts on the less damaging things ever, I have a propensity for bruising and they take a long time to reabsorbe, my pinky and ring finger get numb and tingly when I hold certain stuff (carpal tunnel is on the other 3 fingers I checked), my legs go numb often, sometimes my muscles just feel weak and I'm scared to pick up stuff in case they stop responding. I have a propensity for all kinds of headaches, my gums are also sensitive, I tend to be constipated no matter how much fiber I eat (and yes even if I eat lactose being lactose intolerant I'm still constipated, I just bloat), I have a heat intolerance (I even get rashes if it's too hot out).

I forgot but my ribs feel like they shift when I lay on my side and a couple of times I've had people horrified at something a joint of mine could do (generally my shoulder) and I quite frankly think I almost popped my shoulder out in one of those.

I'm also hypotensive and have a propensity to tachycardia and dizzy spells (or that thing where your vision gets black around the edges) when I stand up and when I do exercise (it doesn't happen when I walk, no matter how fast I do it) and when I exercise I have to stop even if my body doesn't feel tired because I feel like my heart rate is too high but I get cold sweat and shaky hands like it happens when I'm going to pass out. Which I might add I get those symptoms even just sitting sometimes and I have to lay down on the floor or sit with my head between my knees.

I live in a constant state of fatigue no matter how happy I feel, how well I eat or how much I sleep, which I also struggle with sleeping. And the brain fog makes it hard to concentrate.

That fatigue includes my body feeling heavy for no reason at all and being like a zombie all day struggling to even do stuff I want or hang out with friends most days.

The research I first did was regarding the whole hypotension, tachycardia, sport/rest/standing up dizziness fainting thing and honestly every conclusion lead me to POTS as the most likely condition.

That sent me into a rabbit hole of trying to find where the other symptoms where coming from, my search on hypermobility lead me to EDS, particularly H-EDS and honestly I must say a lot of things would make sense but I don't want to self diagnose so what do you guys who suffer any of this conditions have to say? Should I see a professional and just ramble all if my symptoms and see if that gets me somewhere?, or do I have enough of a valid basis to go to a doctor and tell them I suspect I might be suffering from POTS and maybe H-EDS?

Keep in mind I'm from Spain and I can tell you most if not all of the primary care doctors I've gone to have shrugged off all of my symptoms once they checked my heart worked properly in general, they don't even care that I have passed out from low blood pressure during blood draws and have even had convulsions twice after fainting, that and my sensitivity to anesthetics, fuckers just said "you're probably just tired because you're a high school/college/master's degree student", I've gone a fair amount of times since I was 16 and they never check it's always a "maybe it's your period", "maybe you're anemic" (I'm not, my reserves are a bit low but not enough to be considered a deficiency to treat), my blood tests come back well so they couldn't care less, my body weight sits in it's normal range (thankfully, because otherwise I know a good chunk of them would just point to my weight and my period).

Thing is, because I keep overworking myself due to my family situation and I was gifted and I guess that kind of transferred a bit to college, I've finished a degree and I'm on my way to my 3rd master's degree this academic year, and honestly I probably don't complain about the level of pain and tiredness I'm in enough because a) my mother would try to instantly blame it on weight or Physical activity or even just food itself (she's one of those everything you eat is bad, white carbs are the devil incarnate types of person) and I already had an ed for years due to her

b)when I complain about the fatigue my mother tries to one up me and everyone else just advices me to do more sports, spend time with family (no thanks), blame my sleep pattern even though the fatigue is purely physical, tell me I'm over exaggerating or over complaining and that I used to handle pain better as a child (she yelled at me when I complained and told me I couldn't be that tired because I was too young)

I'm going to tell you some more things about me as a child I just now remember my mother complained about: every school day I came complaining that the soles of my feet hurt and my palms too (particularly the right one since I'm right handed) and they'd turn out to be distended. My skin was even more reactive, I was so tired and borderline translucent even when they made me spend all summers at the beach that they took me to the cardiologist several times to check if I had a heart condition and It was working just fine, I experienced headaches almost daily, my immune system was an absolute disgrace, I refused to grip the pencil (scissors and other tools) right because it hurt my fingers, I was always coming home with bruises and injuries that were too extreme for what they would've been for my brother and to reiterate I started complaining about back ache at around 9 years old and of fatigue at 11, and even then me being seemingly constantly tired granted me a couple visits to a doctor to check for leukemia or heart conditions.

I need opinions and people to tell me if there are other conditions I should be researching or if I should just go ahead with the ones I have.