My Disabled Heart Love Eda So Freaking Much - Tumblr Posts

"No one likes having a curse, but if you take the right steps, it's manageable."

This quote brings me so much bittersweet joy. Being disabled with an autoimmune disorder, that quote, and honestly whole interaction, hit home hard, and honestly is why I originally started to love the show as much as I did, and why I decided to stick with it.

Keeping Up A-Frar-Ances is another huge episode for representing issues that come with being disabled. I can't tell you how many times I've been given unsolicited advice on how to deal with my Addison's disease or dysautonomia. Whether it be essential oils, yoga, special diets, or even other non-holistic things, I've been asked about it all. While some of those things may help symptoms, nothing other than my medication is going to physically give me cortisol. I have my routine, and I'm okay with sticking with it, just like Eda.

Usually my response is followed by something like this. "Do you even know what is in those medicines?" "Does that even work?""What if the medications are actually making you worse?". What most people don't realize is I am very proactive about my health, I want to know why and how the things I do work, so yes. I do understand them, again just like Eda. Eda was in the potions track at Hexside, of course she knows what she's taking! But, just like people in real life, that answers not good enough. People want a cure, and sometimes that means they want something unattainable.

It's also not super uncommon for people to try and force their "treatments" on a person, a lot like how Eda’s mom is trying to. I've seen people hide stuff in food, drinks and just use straight up manipulation, because they think they know better.

They a lot of times even get to this point, where they think they know better than the professionals.

Don't get me wrong, advocating for yourself is important. If I hadn't fianlly spoke up about what I thought was wrong with me to some doctors, things could have gone very wrong. But that doesn't mean they're all wrong, or that they're all incompetent. But, a lot of times that's the direction this kinda thinking goes.

I also love that they cover this side of being disabled as a child. Because of my family's certain situation and the age I was when I became disabled, I've never dealt with this side of disability, but a lot of my friends have, especially ones who have had chronic illnesses since a young age. The other children end up getting left out, almost always unintentionally, and they feel like they have to show out to get their parents attention. This can apply to parents, teachers, friends, whoever. It can cause grief between the siblings as well. The kid who's sick may be getting all of the attention, but they don't want to be ill, it's not like they typically want all of that attention on them, but at the same time the other siblings feeling left out is valid as well. This episode does such a good job of showing that.

I could keep going on and on about how the dynamic changes when the other child becomes disabled, cure scams, etc. But I'm too tired 😂

Ugh I love this show.