Photosensitive Epilepsy - Tumblr Posts

HONESTLY

I have photosensitive epilepsy, and coming from personal, terrifying experience, it's an awful way to live.

I love Across the Spiderverse and Stranger Things. I enjoy rock and metal music and concerts, but these are things I, and many others, must either avoid or enjoy with EXTREME caution.

I get it, flashing lights can make an atmosphere more lively in a movie, or it can make a scene feel so tense and threatening in a show, but it really isn't necessary for someone to put into their blog. Really.

Photosensitive epileptics can't just walk the tightrope of life with caution, we risk our lives just turning on the TV, or in some cases, our phones.

For fucks sake, do better.

do people who disregard photosensitivity realize that seizures can fucking kill or do they just not care. do people not realize that their "aesthetic" "cool" flashing lights that happen without SUFFICIENT warning... are fucking capable of killing people. i dont even care if i sound pissy right now because i am pissy, im sick of feeling like myself and others with epilepsy arent even afforded the right to be an afterthought to most people. im not even photosensitive but ffs this shit makes me so angry.

seizures themselves can be deadly if they go on too long, theyre essentially electrical overloads in the brain, you know, that organ that controls the entire rest of the body? and seizures can result in injuries or death from falls. from choking on our own vomit. from drowning in our own bathtubs, if we think we might be safe to bathe and then get proven wrong. maybe someone just wanted to watch a video or movie while they took a spa day.

did you know that epileptics are more likely to die younger than those without epilepsy, with all those risks and more? and have you heard of SUDEP? sudden unexpected death in epilepsy, death without a known cause, a rare but very real possibility for us. it kills approximately 1 in 1000 epileptics a year, if not more since it may not be accurately tracked. thats thousands of us dead a year. we do not need you to add to our death rates.

"all these things are known risks, epileptics just have to be more careful-" epileptic people should not have to be on constant fucking high alert. how about instead, people just learn to give a shit about life threatening disabilities? it takes so little effort to just offer a CLEAR and VERY OBVIOUS warning AHEAD OF TIME, for a SIGNIFICANT AMOUNT OF TIME, before your stupid flashing lights. or just dont add them at all. are they necessary? are they really necessary? would you really fucking rather photosensitive epileptics have to be constantly on guard, IMPOSSIBLY on guard, rather than you just considering their safety? nobody can anticipate every instance of unexpected flashing lights they might come across. but you, creators, are able to provide warnings, and if for any reason you arent, then hire someone else to edit the warnings in or just get rid of the fucking lights altogether.

again, my epilepsy is not photosensitive, but i will never stop being protective of my photosensitive siblings. my own life is scary enough with the form of epilepsy i have, i cannot imagine how terrifying it must be to have to maneuver through the world with photosensitivity, and i dont want careless assholes to go killing my fucking community because you dont give enough of a shit to worry epileptic people. i am pissed off and emotionally exhausted and the shit with elon musk having a flashing gif on his twitter account was the straw that broke my back today so youre getting a pissed off PSA. everyone better start doing a whole damn lot better.

link to the CDC page about SUDEP

link to the epilepsy foundation site page about seizure risks

people without epilepsy are encouraged to reblog but know that i am already angry and will not tolerate bullshit on this post. give a fuck about other peoples lives and safety or im blocking you.

Fellow epileptics, I have some fantastic news for you. There’s an add-on that makes the internet safer for us. It’s called Epilepsy Blocker. The creator had me test it out, give feedback, he made adjustments, and it works great. It may even help those with migraine disorders that are triggered by the same thing that messes with those of use with photosensitive epilepsy (mine is a case of being absurdly sensitive).

This is the only add-on I’ve encountered made specifically for those of us with epilepsy. It’s not a well known add-on, but I hope to see that change.

Photosensitivity warning for Good Omens season 2.

I can’t believe we have to keep doing this over and over again but in season 2 episode 1 of good omens there is a long scene (upwards of ten seconds, which to me is long for an extremely dangerous epilepsy trigger) of very bright white and red flashing lights. It’s the entire screen. Unfortunately for me I was already watching this with a migraine coming on and I’m immediately in agony. There was no warning whatsoever before this happened. It’s at almost the very end of the episode. Please reblog to save someone a migraine or seizure.

Hey! There’s a recent game on steam (soon coming to consoles) called Amber Isles. Cute dino game (please go support devs)

HOWEVER, there is a VERY bad bug right now with tails (in particular one of the more avian-like paleofolk tails that kinda looks like a butterfly, at least for me) It again could be a possible concern for those with epilepsy, if I decide to keep the game I’ll update when this is fixed. Stay safe folks!

(I’m not actually epileptic again- HOWEVER I tagged the same last time I posted like this. I’d rather people block me for posting on the wrong tag after people see this, THAN HAVE SOMEONE DIE TO SUDEP. People with epilepsy can 100% correct me on this too!)

EDIT: It seems to be a low performance thing! Still worth noting though if you do have an old/laggy laptop and have epilepsy or photosensitivity, OR it happens anywhere but the shop. Hard to tell.

EDIT 2: IT IS WITH ALL LONG TAILS IT SEEMS! ALSP MOVED TJE PROOF TO A REBLOG BECAUSE THE MAIN POST BEING A WARNING FOR PEOPLE WITH EPILEPSY AND HAVING SOMETHINF FLASHING WAS NOT SMART (albeit it had big text “WARNING FOR FLASHING BELOW!” And a lot of space (like 10 lines prob) but still- gonna be in a reblog instead!

Fellow epileptics, I have some fantastic news for you. There’s an add-on that makes the internet safer for us. It’s called Epilepsy Blocker. The creator had me test it out, give feedback, he made adjustments, and it works great. It may even help those with migraine disorders that are triggered by the same thing that messes with those of use with photosensitive epilepsy (mine is a case of being absurdly sensitive).

This is the only add-on I’ve encountered made specifically for those of us with epilepsy. It’s not a well known add-on, but I hope to see that change.