No, there are not 69 of us but we are hiding in a trenchcoat.. medically recognised adult DID system studying to become a clinical psych. We are aware we make mistakes, we know we make mistakes, we're open to kind discussion!!!! 🇳🇿🏳️🌈🏳️⚧️ Please remember, there is a person behind almost every post on the internet, including syscourse. Be kind.
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Officially Got Diagnosed With POTS Today
officially got diagnosed with POTS today 😎
(and had another physiotherapist take a look at my joints and skin and go 'yeah that's... that's bad and looks suspiciously like hEDS but i dont have the qualifications to say for sure, sorry')
this comorbid disorder sh*t is a pain in my... well, everywhere, but t least i know i'm not misreading my symptom set :) that's a relief at least.
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More Posts from 69constellationsinatrenchcoat
Fainting onto your laptop is funny. We had a word doc open, and there's just 22 pages of gibberish and new lines from having our head laid on it for 15 minutes.
...this isnt what everyone means when they say they're dizzy?
When other people say they’re dizzy, they mean ‘phew! My equilibrium is a bit off! In a just a few moments I’ll be fine!’
When I say I’m dizzy, I mean something very different.
I mean that I can see black spots in my vision, and I can’t tell if this is going to be the time I pass out.
It means that the world is swimming underneath my feet, stretching and distorting like an obstacle course even when it’s just a straight, flat path.
It means there’s so much pressure in my head and not nearly enough.
It means that I can feel my heart speed up and beat harder, trying to adjust to the new gravity, just because I’ve shifted slightly.
It means I can feel the nausea rising in my stomach and the bile come up my throat.
It means that walking is a challenge. Getting a snack is a challenge, going to the bathroom is a challenge. Sitting up is a challenge.
So, when I say I’m dizzy, I’m trying to dumb it down so that you can understand a fraction of what I’m feeling. Not that I’m not feeling it. On good days, it’s a hindrance. On bad days it stops me doing anything. Stop telling me that ‘just being dizzy’ doesn’t make me ‘that disabled’. You barely know the half of it.
We customised our cards against humanity pack to make it funnier for our family/friends
Anyway, I just want to share this iconic combination that was played by a friend of ours directly after we told them we were a system.
All's fair in love and poetry