In Honour Of It Being Around 1 Year Since My Health Declined And I Became Physically Disabled, I Wanted

In honour of it being around 1 year since my health declined and I became physically disabled, I wanted to share my recent calls which is a great summary of my life (alt text available)

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Link will be in the reblog!

“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

Disabled people don't owe you a diagnosis. Don't ask "what's wrong" there's nothing wrong with me I'm just disabled. You're a stranger, why would I tell you something that should only be between me and my doctor?

it's OK if you "don't get out much", it's OK if most of the time you leave your house it's for medical appoints, it's OK if the only time you leave your house is for medical appointments. it's OK if you can't go out alone and need help to get around. it can be lonely and isolating, and holy fuck does it get boring sometimes! but it's nothing to be ashamed of. we're in this together even if we're on opposite sides of the world. i love you.

I think the scariest thing about having a chronic illness is you truly don’t know what you’re going to feel like from one day to the next.

Yesterday I was able to shower and stand up for more than 10 minutes and today breathing is hard.

The unpredictability and the sheer fear of having to deal with flare ups and feeling like everything is falling apart constantly.

I am tired.