Cripple Punk - Tumblr Posts

I don't think non-disabled people realize how dehumanizing it is to be a visibly disabled person and get stared at for just existing. Especially in large crowds, it's just constant eyes on you with looks of confusion, disgust, and pity.

I was borrowing a wheelchair at an amusement park and the amount of people (of all ages) who stared at me while I was minding my own business made me sick to my stomach.

Sometimes support comes in the form of your friend saying "that fucking sucks man" after you tell them about your chronic pain

/hj

I intend to donate my wheelchair because I've found alternative ways to manage my pain, and my current chair is not suited for me personally. But I'm worried that if I need it, I won't have it. And since I'm donating it, if I wanted to get another chair I'd have to pay out of pocket since the Ontario support programs are incredibly choosey and lengthy.

In conclusion... ooooouuuugh

Spoke to a rheumatologist today. Got another blood test done. I feel like I'm in a cycle.

I just had two appointments back to back and both of them referred me to somewhere else.

The rage of the disabled is never ending.

throws the medical system into the fucking sun. Ok I'm fine

So much of being a disabled person looking for the limited support we have is waiting.

My spring semester starts tomorrow, and I only got an email two days ago about accessible seating. The email states it will take up to two weeks to process. Why on earth am I only being allowed to "ask" for accessible seating when I won't even get it in time?

I'm in a fortune situation with my health right now where I use a cane to walk, instead of my rollator, but if my health declines again, I can't just WAIT to get the support I need.

Ever since I was a little girl I knew I wanted to be fundamentally ostracized from general society on account of my disabilities

It can get very snowy where I live and the sidewalks aren't often salted, which results in myself and other disabled people with mobility issues barely being able to fucking get anywhere. I nearly slipped & ate shit at least three times on a 10 minute walk to my medical clinic. Salt the sidewalks in front of your residence.

Trying to be a uni student while disabled is like pulling teeth. Even with a reduced course load, I can't even manage to go to my classes on Fridays because I'm just completely wiped out. The majority of it is because I'm in fucking pain all the time and I can't focus

When I say that the medical system is failing me, your response shouldn't be "Google your symptoms" or "Only you can help yourself" because neither of those things are remotely helpful. Instead, treat those failed with by the system with empathy and get fucking mad over the injustice.

My back hurts from sitting, and my legs hurt from standing. And I didn't get a call back about my x-ray *jumps into the sun*

the world of disability is often one of absolute loneliness and destroying sadness. this loneliness and sadness is not from the hands of the disabled, but rather the abled. we, as the disabled, blur the lines of their understandings of joy, experience, and self -- they cannot imagine being disabled and the struggle accompanied with it until they become disabled themselves, as they all will. in the meantime, we must find meaning and joy within our communities because it is difficult to find belonging elsewhere.

In honour of it being around 1 year since my health declined and I became physically disabled, I wanted to share my recent calls which is a great summary of my life (alt text available)

Who was I before my disability? Was I happier? When I look at photos of myself, am I only my disability? When I look in the mirror, who do I see?

There is a lot of loss with the formation or the realization of disability. Loss of opportunity, resources, friendships, sense of self. All of this loss is tactical, of course, by the institutions that constantly try to shove disabled people out of their spaces, and intentional by society to isolate disabled people.

The lack of support, solidarity, allyship, results in the loss of self. When we are seen only for our disability, that is all we see in ourselves. All we see is that loss.

However, disability isn't all loss. It's painful and, more often than not, it sucks. But we cannot allow ourselves to define our disability as solely loss. There is more than that.

It's just a matter of finding it.

people are constantly trying to deny disabled people the privilege of their own anger. we're forced into situations we don't want to be in have to rely on people or institutions we don't want to, have to constantly project the idea that we're thankful, hopeful, trying our best... it's ridiculous. when a disabled person is angry about something people flock to tell them that they shouldn't feel this emotion. "doctors are trying to help you", "be grateful you even have what you do", "you're the one making yourself miserable". at the end of the day it just goes to show that they don't think disabled people deserve even the meagre amount that we are given, so that's why they think we have no right to be angry

After about 16 months of constant pain, I finally got a diagnosis. Turns out, I have long COVID. The nurse said the symptoms overlap with fibro, so I've been put on an anti-inflammitory.

I don't know what I expected, but it wasn't this. Experimental drug trials are the only other medical options I have.

Time to start wearing a mask again.

Ok so at this point I've had two people roll up to me in manual wheelchairs, well, one of them was somebody pushing somebody who was nonverbal at the time, but it still counts. They asked me why I had zip ties around my tires.

It's winter where I'm living and we have really bad snow. And the snow plow people are really bad at their jobs probably because there aren't snow plow people who clean sidewalks. As a solution I got to thinking about how I could increase the traction on my wheels. And the most redneck thing I could think of was taking a bunch of zip ties and tying them around my wheels. They last surprisingly long, and work surprisingly well. It's basically the same premise as chains for your tires during the winter.

I chose to space them out pretty evenly so there's about one for every spoke. You could probably do more or less depending on how many you want and how much traction you get but I wouldn't go more than three per spoke. I realize that it's a bit later in the winter, and I probably should have made a post about this sooner, but I came up with it about a week ago. So please share this, even if you're not disabled, because there are tons of people I know who are stuck in their houses because they can't get around in the snow. A pack of zip ties costs about $5, which compared to $200 knobby snow tires is a big save, and if you want to invest you could get colored zip ties.

HELL YEAH

DISABILITY PRIDE MONTH!!!!!

This is my first disability pride month with a diagnosis!

"Pride month is over"

WRONG! Your pride month is over! Me and all the other disabled queers are having pride month two: disability edition

Hi!!!! I’m a bit of baby alt/punk kid, and I’m really nervous to actually reach out to folks to ask about things (the Reddit pages I found were kinda scary and strict)

If anyone would be willing to reach out, I’m making my first jacket and have a few questions! They might seem a bit obvious bc I’m newer, but I really do want to learn! Also if anyone has any band recs I’d be super interested.