Ehlers Danlos Life - Tumblr Posts
1 year ago
Y’all, what’s the benefit of getting a hEDS diagnosis? Every Doc I’ve seen has brought up that I probably have it but none will actually evaluate me for it (based on the criteria to my understanding I definitely fit it) and I keep getting told there’s no point in actually getting the diagnosis so they don’t want to do the evaluation. They’ve offered genetic testing which is nice but that shits expensive and I know technically necessary for the diagnosis but if they won’t even do the in office evaluation what’s the point of it (I mean unless I have one of the other types)
Can I claim it for myself? I understand if not since I’m not formally diagnosed but I’m just curious.
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disabled
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hypermobility
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ehlers danlos life
ehlers danlos awareness
ehlers danlos syndrome
hypermobile ehlers danlos
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doctors
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hEDS diagnosis
9 months ago
dude i’m so bricked up right now (i have not shat in days)
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