Doctors Appointment - Tumblr Posts

I wish there were services where you could book a trained Support Person for a drs appointment.

I have literally put my neurologist appointment off for 2 1/2 months bc I’m scared to get my injections.

The last time I was in my drs office I sobbed after he was finished. It was horrible. And I feel embarrassed even though I know I have no reason too.

And it’s not that I don’t have people that could go with me. I do. But what’s the point if I don’t feel that support? I might as well go alone.

So here I am, putting this inevitable appointment off for who knows how long. Which I shouldn’t because one raindrop basically puts me on bedrest for a week if I’m lucky.

Just gotta love having chronic migraines🙄.

UGGGGGHHHHHHH

I hate this crappy cycle of pain and fear.


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Y’all, what’s the benefit of getting a hEDS diagnosis? Every Doc I’ve seen has brought up that I probably have it but none will actually evaluate me for it (based on the criteria to my understanding I definitely fit it) and I keep getting told there’s no point in actually getting the diagnosis so they don’t want to do the evaluation. They’ve offered genetic testing which is nice but that shits expensive and I know technically necessary for the diagnosis but if they won’t even do the in office evaluation what’s the point of it (I mean unless I have one of the other types)

Can I claim it for myself? I understand if not since I’m not formally diagnosed but I’m just curious.


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