Hypermobilty Syndrome - Tumblr Posts

Tired flames

Points of fire

Burning through my skin

No - it is lava

Exploding within.

A joint too well oiled

A spanner twisted too far.

A tree bent over backwards

And yet sticky, like tar.

A single grain of sand

The last drop of sweat

A step out of place

On a rocky moonscape

It is all for naught.

The rising sun hangs low in the sky

It rests it's weary head

We can but try, he said.

Guess who possibly has hypermobility spectrum disorder. 😜

It is okay if you do not do better tomorrow than you did today. It is okay if you do worse tomorrow than you did today.

If you have made it through the day, that is enough. It doesn't matter if it's been less productive than you wanted, sometimes all you can do is get through the day. And that is okay, even when it feels bad, especially when you used to be able to do things.

It is okay for you to get worse, it does not reflect on you as a person.

Sometimes things aren’t going to get better

If you have a chronic illness or a disability, and that’s going to be with you forever

So sometimes things don’t get better, but that’s okay

Sometimes what you need to do is work on managing things instead of trying to see how the situation could be better or worse, and that’s okay

I just found out my cousin and her sweet little girl in middle school, a little one I held when she was is diapers are both starting to show signs of my disease and it’s such a hard feeling of validation that I’m not alone and absolute dread knowing the pain they’ll feel. That sweet little girl should never have to know this. She’s already needing pt for her ankles and knees. Fuck man disability isn’t fair.