Joint Hypermobility - Tumblr Posts

A paraphrased conversation between my mom and I

Me: “I couldn’t go to class today because my disability is causing my joints to be too unstable for what we are doing today plus my pots is really flairing”

My mom: “ you know I don’t see you as disabled, you should really stop thinking about disability and start thinking of ability or different ability”

I just want to not be in pain.

I just want have parts of my body not be numb.

I just want to be able to go up a flight of stairs without feeling like I’m dying.

I just want to be able to go on a walk and actually enjoy it rather than have to think about how close the next bench is.

I just want to not have so many gi issues.

I just want to not be sick all the time.

I just want to be able to go through a day and not be absolutely exhausted by the end of it.

I just want to be able to live and not have to worry about whether I’ll be able to do what I can do today tomorrow.

I just want to have a body that works right.

Okay so I’m heading back to school after spring break and my trip was AMAZING like seriously I loved it but wow I’m in so much pain now from everything we did. I had rest time and most days were laid back but damn even still. I made the mistake of bringing neither my crutches nor my braces with me because I thought they’d be a nuisance rather than helpful but I have definitely come to realize that any potential level of nuisance-ery is far less than the helpfullness of them. I hopefully won’t make that mistake again.

On another note screw the stairs you have to take up to a plane sometimes. Those are so wobbly and steep and long. And oh my my knees wanted to CRY.

Guess who possibly has hypermobility spectrum disorder. 😜