Pots Syndrome - Tumblr Posts - Page 2

any wise words, advice or insight?

so i've been decently confident that i have POTS , especially because i started to feel this way about 8-ish years ago after i was bedridden sick.

^ (but for almost as long as i can remember, i never liked standing up for long times, and felt faint often, so i really don't know for sure) more context below cut

even so, i don't move around often, aside from when i'm at work 3x a week (5-6hrs each) or going out with friends. i usually stay in my room crumbled up in my desk chaid or in bed. i also have arfid and so i don't have the best eating habits too

because of this i'm not sure if i an physically built wrong or if the fainting, weak knees & arms, and dizziness (+other POTs-like symptoms) are just a result of my habits? i used to be fairly active in elementary school + middle school, but cannot remember if that ever helped me. i know that even when i was active, by ribs would feel broken with cramps and bruises. so i really can't tell if i was just living like this or only now am feeling it.

my doctors aren't listening too much, but that seems normal for my healthcare system/hj

i find that if i can sit and eat every once and a while during my time i do go out, i can suffice with only a little bit of dizziness, but i still fear leaving the house without any secure way of breaks or snacks, so i'm using the world's most painful hand-me-down wheelchair and i don't even know if i should get a new one because i don't feel justified since i've 'lived long enough' like this without one. (even though, i have to admit, i only stopped leaving the house because of my symptoms over a decade ago)