Not My Mom Trying To Walk With My Crutches Today And Asking Me If I Can Do Any Fun Tricks Like Idk Spin

Not my mom trying to walk with my crutches today and asking me if I can “do any fun tricks like idk spin around” with them.

Like

1. Don’t touch them. I didn’t say you could touch them and it’s disrespectful to mess with someone’s mobility aids

2. Don’t fucking play with them they are how I get around you could break them

3. Don’t touch my shit if I don’t say explicitly you can touch it

4. The fuck do you mean a spin??? Are you asking me to do a color guard toss or???

No I didn’t say any of this to my mother cause hahaha I hate confrontation and simply didn’t have the energy. I was literally IN THE MIDDLE OF A NAP that I desperately needed after going to the doctor.

Also Who’s gonna tell her not to barge into my damn room?? Evidently not me cause I’ve told her and she still doesn’t listen

I guess a good thing regarding my parents and my mobility aids is that they’ve just let me be and not questioned me too much though they do give me the “look” of “do you REALLYYYYYYYY need that”

Y’all, what’s the benefit of getting a hEDS diagnosis? Every Doc I’ve seen has brought up that I probably have it but none will actually evaluate me for it (based on the criteria to my understanding I definitely fit it) and I keep getting told there’s no point in actually getting the diagnosis so they don’t want to do the evaluation. They’ve offered genetic testing which is nice but that shits expensive and I know technically necessary for the diagnosis but if they won’t even do the in office evaluation what’s the point of it (I mean unless I have one of the other types)

Can I claim it for myself? I understand if not since I’m not formally diagnosed but I’m just curious.

Yes this! I was absolutely talking about abled people playing with our mobility aids. If it it yours do what ever you want with it and have fun with it! We might as well make our lives a little more enjoyable

MOBILITY AIDS ARE NOT FUCKING TOYS GODDAMN IT. THEY ARE NOT HERE FOR YOU TO PLAY WITH!!!

Non caps: mobility aids are not fucking toys goddamn it. They are not here for you to play with!!!!

I have SO MANY I’m really bad with names though so even though I’ve named them all I’ve forgotten most of their names. My favorite/bestie is named Pig and he’s a Pig (creative naming right) that’s dressed up as a cow and he owns my heart. He was given to me by my girlfriend (who uses they/them pronouns) and my life is fuller with the two of them in it. I have absolutely no clue how many stuffies I have in total but it’s probably 100 if not more I just love having squishy little friends

So many people collect stuffed animals!! This has made so happy!!!

MOBILITY AIDS ARE NOT FUCKING TOYS GODDAMN IT. THEY ARE NOT HERE FOR YOU TO PLAY WITH!!!

Non caps: mobility aids are not fucking toys goddamn it. They are not here for you to play with!!!!

hi ! you ! please don't blame yourself for the secondary effects of your disability. the weight changes are not your fault. the muscle atrophy is not your fault. the malnutrition is not your fault. the new/worsening mental health condition is not your fault. the low hygiene is not your fault. none of it is your fault!

are there areas of your self care that need improvement? of course, that's true for everyone! but it's hard to be kinder to yourself when you're disabled. sometimes we downright can't do things because of our disabilities. and it all snowballs and self perpetuates. that's not a moral failing - that's scary and difficult to go through!

you don't deserve blame, ridicule, or hatred. you just have limits. you just need support. and that's, morally, neutral. it's okay. you're not doing anything wrong, and i hope things get easier soon. give yourself a little more grace, okay?