Not My Mom Trying To Walk With My Crutches Today And Asking Me If I Can Do Any Fun Tricks Like Idk Spin

Not my mom trying to walk with my crutches today and asking me if I can “do any fun tricks like idk spin around” with them.

Like

1. Don’t touch them. I didn’t say you could touch them and it’s disrespectful to mess with someone’s mobility aids

2. Don’t fucking play with them they are how I get around you could break them

3. Don’t touch my shit if I don’t say explicitly you can touch it

4. The fuck do you mean a spin??? Are you asking me to do a color guard toss or???

No I didn’t say any of this to my mother cause hahaha I hate confrontation and simply didn’t have the energy. I was literally IN THE MIDDLE OF A NAP that I desperately needed after going to the doctor.

Also Who’s gonna tell her not to barge into my damn room?? Evidently not me cause I’ve told her and she still doesn’t listen

I guess a good thing regarding my parents and my mobility aids is that they’ve just let me be and not questioned me too much though they do give me the “look” of “do you REALLYYYYYYYY need that”

Mobility Aids should be free.

Use seat cushions! Wear your braces! Sit on the floor if you have to! Ask for adjustments! Use your mobility aids! Take your meds (even in public)!

These things are not embarrassing. What is embarrassing is grown adults not understanding that young people can be disabled.

You can be disabled and young. Disabled and hot. Disabled and angry. Disabled and a fucking superstar. Don't let the ignorance of others stop you.

I really really wish New York City was more accessible

I’m currently in NYC and because of the repurposing of buildings rather than building new ones in many parts of the city they end up being inaccessible.

I understand wanting to save and repurpose buildings rather than tearing them down and rebuilding but there has to be a better way to repurpose that can include being accessible.

Yesterday I went to a CVS that was in an old bank building and guess what no automatic doors and the only way in was a flight of stairs.

Today I went to the Chelsea market and sure getting in was fine enough except the lack of automatic doors and cobbled crosswalks/streets (my enemy) outside but even inside the floor is so bumpy and uneven that I constantly feel like I’m going to fall and have to be hyper aware of where I’m putting my feet and cane.

There has to be a way we can do better as a society and as people.

Also the amount of doors people have let shut in my face when they see me coming on my crutches is ridiculous when they were just holding it open for someone else like sure I can do it and I will but it would be nice if you’d at least keep it open long enough for me to grab it with my foot or crutch or something

On the good side though I have seen a ton of wheelchair accessible taxis and that makes me really really happy. I’ve seen more of those than of regular taxis actually.

Edit: in the comments on this post I have been let know that the taxis that I mentioned are not in fact as accessible as they appear and are rather unsafe for those who are in wheel chairs so I guess that’s just one more shit thing. Go look at the comments to find more explanation/lived experience with this

I fucking hate doors.

They’re heavy and when I have my cane let alone my crutches they’re a fucking nightmare to open.

Why aren’t there more accessible doors? Why is nearly every “accessible” or automatic door not working or up a goddamn flight of stairs???

hi ! you ! please don't blame yourself for the secondary effects of your disability. the weight changes are not your fault. the muscle atrophy is not your fault. the malnutrition is not your fault. the new/worsening mental health condition is not your fault. the low hygiene is not your fault. none of it is your fault!

are there areas of your self care that need improvement? of course, that's true for everyone! but it's hard to be kinder to yourself when you're disabled. sometimes we downright can't do things because of our disabilities. and it all snowballs and self perpetuates. that's not a moral failing - that's scary and difficult to go through!

you don't deserve blame, ridicule, or hatred. you just have limits. you just need support. and that's, morally, neutral. it's okay. you're not doing anything wrong, and i hope things get easier soon. give yourself a little more grace, okay?