Chronic Migraine - Tumblr Posts
Around five months ago I finally got diagnosed with Chronic Migraines. Which was after a year of suffering and six months of waiting to be seen for a consultation.
I did a lot of talking with people who I know suffer from or know someone who does suffer from chronic migraines.
I got prescribed rizotriptan (i hope I spelled that right) as a rescue med, on top of my botox treatments.
I was curious if anyone else who’s taken rizotriptan has gotten a similar sensation of rug burn inside their skull? I’ve also had intense muscle tension and burning located in my jaw and it makes my teeth ache.
Was just wondering if this was just me? Or if anyone has had a similar experience/reaction?
I wish there were services where you could book a trained Support Person for a drs appointment.
I have literally put my neurologist appointment off for 2 1/2 months bc I’m scared to get my injections.
The last time I was in my drs office I sobbed after he was finished. It was horrible. And I feel embarrassed even though I know I have no reason too.
And it’s not that I don’t have people that could go with me. I do. But what’s the point if I don’t feel that support? I might as well go alone.
So here I am, putting this inevitable appointment off for who knows how long. Which I shouldn’t because one raindrop basically puts me on bedrest for a week if I’m lucky.
Just gotta love having chronic migraines🙄.
UGGGGGHHHHHHH
I hate this crappy cycle of pain and fear.
Just wanted to say this for all my non marginalized friends.
Part of the issues that I see from ppl outside of a marginalized community is that those who aren’t apart of a specific community assume things.
STOP ASSUMING THINGS!!!!!
In my opinion, if you have a genuine curiosity and want to learn, ask me questions!!! I’ll try and answer to the best of my ability.
I wouldn’t wish the period-migraine cocktail on my worst enemy. Oh my gosh!
When I think back to my jr year (only 3, wait…could be 4yrs ago) of high school I remember nearly nothing. I remember starting to get migraines, helping out with the spring musical, getting a job, and being in pain nearly 24/7.
It’s like my migraines were a black hole that sucked all the light (every moment that wasn’t emotionally tattooed into my brain) out of everything.
I literally buffer when I try to remember my jr yr😭.
I forgot to mention yesterday but I survived my first few days of a new school only with two headaches, two stomach aches and minor pain 👍
My brain is trying to cha cha slide out of my skull.
I just told my doctor that I had little to no appetite, and was having about three migraines a week. I told him that this was starting to freak out me and my family.
"Why?" Asked the trained medical professional.
Like.... Sir? Did you not understand my previous statement? I'm not eating and am frequently in great amounts of pain........ Why would I be ANYTHING OTHER than freaked out by this?!?!?!!!
What kind of question is that?
The neurodivergent experience is talking about your brain as if it's a separate entity from your self
27 Dec 2023
Ok so i've mentioned having migraines/headaches this past week or two, i went to the doctor to get them treated and yes they are migraines (and not covid thank god) and i'm on multiple meds for them (anti-nausea, magnesium, aspirin, paracetamol).
Apparently there are people who have gone their whole lives without experiencing a migraine! WTF!! I wish... I've had them every second or thrid day for the past two weeks... fun.
I really hope they resolve soon because they're really gotten in the way of my study and uni assignments! I'm really behind on my work... I've been trying to catch up but it's very hard when every other day i'm completely out of commission with a migraine.
Today i have a headache, or maybe a small migraine - i can't tell cause i took a nausea medication...
Going to try to get more caught up with last weeks uni modules
27 Dec 2023
Ok so i've mentioned having migraines/headaches this past week or two, i went to the doctor to get them treated and yes they are migraines (and not covid thank god) and i'm on multiple meds for them (anti-nausea, magnesium, aspirin, paracetamol).
Apparently there are people who have gone their whole lives without experiencing a migraine! WTF!! I wish... I've had them every second or thrid day for the past two weeks... fun.
I really hope they resolve soon because they're really gotten in the way of my study and uni assignments! I'm really behind on my work... I've been trying to catch up but it's very hard when every other day i'm completely out of commission with a migraine.
Today i have a headache, or maybe a small migraine - i can't tell cause i took a nausea medication...
Going to try to get more caught up with last weeks uni modules
After a year of trialing other injectable migraine treatments that barely worked because our insurance company changed the formulary- my appeal was FINALLY approved & I get to go back on the medication that actually helped!!! Never in my life have I been more excited to stab myself in the stomach, lol.
Tips on not getting migraines
1) no light ever
2)don't experience stress
3)die
4) just don't
If I get another little wink wink nudge nudge whenever I mention that I have a dr note out of gym I think I might lose it
Healthcare professionals always say they want a detailed patient history, but when the patient gives them that history instead of another medical professional they’re like ‘hmm that’s suspicious’
Healthcare professionals always say they want a detailed patient history, but when the patient gives them that history instead of another medical professional they’re like ‘hmm that’s suspicious’