I Feel Like Some People Dont Realize What It Means To Have Pain In ALL Your Joints

I feel like some people don’t realize what it means to have pain in ALL your joints

like yes, my legs hurt and mobility aids (cane and forearm crutches in my case) help with that. But my arms also hurt, and therefore sometimes I cannot use the mobility aids that help with my legs because they put more pressure on my arm joints. Everyday I have to make the choice of what joints take priority, if my legs hurt more I’ll use my mobility aids, if my arms hurt more then I won’t use them. But even on days I do use my mobility aids, my arms STILL hurt. And on days I don’t use my mobility aids my legs STILL hurt.

Things my body can’t tolerate:

- Heat - Cold - Humidity - Rain - Extreme Dryness - Over exertion - Mild exercise - No exercise - Standing up - Sitting down - Lying flat - Lying on my side - Lying on my back - Lying on my stomach - Sleep - No sleep - Eating - Not eating

A paraphrased conversation between my mom and I

Me: “I couldn’t go to class today because my disability is causing my joints to be too unstable for what we are doing today plus my pots is really flairing”

My mom: “ you know I don’t see you as disabled, you should really stop thinking about disability and start thinking of ability or different ability”

Fuck I have Covid again. Why the hell do people go out when they’re sick??? I’m 98% sure I got it from a girl in one of my classes who wouldn’t stop coughing. Sure it’s not her fault that the class isn’t recorded so missing lecture means missing material but still why is it so fucking normalized to go out when you’re sick??? I’m honestly really scared that this will end up like the last time I had it, in bed with a high fever and racing heart 24/7 with muscle weakness and extreme fatigue. I already have long Covid from that time what the fuck is this time going to do to me??

I found a guide for a no tape, easy to unwrap wrapping tutorial to make Christmas a little more accessible, wish I just found it sooner

spin