Going Home To My Parents Today And Ive Brought My Mobility Aids With Me (crutches And Cane) And Honestly

Going home to my parents today and I’ve brought my Mobility aids with me (crutches and cane) and honestly I’m terrified of how my parents are going to react but I’ve decided to put my health and pain above their opinion and I’m honestly really proud of myself for that.

I feel like a need a brace for every single mfing joint in my body

One of the most annoying things about POTS- I have a separate air conditioning unit from the rest of the house in order to keep my bedroom at the same temperature throughout the day. It's set to 80F° and has not changed at all, but I keep having to bury myself under my thick fluffy blanket and heavy bed comforter because I'm freezing- then I through it off because it's way to hot and I feel like I'm burning up- which sucks. It's like having a fever, but I very much do not have one- I checked .

To summarize my rant about the annoyances of having no body temperature regulation due to POTS- is

Temperature- no change

Body heat- burning up or freezing, switching at random

This is bs- I want a refund on my very dysfunctional body

Does anyone have any suggestions for holding things while using forearm crutches? Like backpack is definitely easiest but what if I have like a grocery/tote bag

If someone loves you they will care about how your body feels. Living with chronic pain is tough, and it permeates every inch of our lives. I’m not saying the people around you have to be perfect but they should care about how their decisions can negatively affect you. Expecting you to go to events that hurt you, saying you complain too much, being entirely thoughtless in regards to how your body functions, it isn’t okay. So let’s all stop pretending it is.