One Of The Most Annoying Things About POTS- I Have A Separate Air Conditioning Unit From The Rest Of

One of the most annoying things about POTS- I have a separate air conditioning unit from the rest of the house in order to keep my bedroom at the same temperature throughout the day. It's set to 80F° and has not changed at all, but I keep having to bury myself under my thick fluffy blanket and heavy bed comforter because I'm freezing- then I through it off because it's way to hot and I feel like I'm burning up- which sucks. It's like having a fever, but I very much do not have one- I checked .

To summarize my rant about the annoyances of having no body temperature regulation due to POTS- is

Temperature- no change

Body heat- burning up or freezing, switching at random

This is bs- I want a refund on my very dysfunctional body

*gripping my sink* using a mobility aid will not hurt others it can only help you are deserving of any aid that helps you live your life better

Going home to my parents today and I’ve brought my Mobility aids with me (crutches and cane) and honestly I’m terrified of how my parents are going to react but I’ve decided to put my health and pain above their opinion and I’m honestly really proud of myself for that.

i'm sorry about your parents it sucks when the people in your life don't listen. i hope you know that no matter what others say you're the one that knows you best and you deserve to be treated well. wishing you all the best and sending love through the screen <3

Thank you so much for all of that it really means a lot to know that people are rooting for me (and others who deal with the same kind of shit as me)

I have a drs appointment on Tuesday to hopefully get evaluated for hEDS yay. I Hope i can get a preliminary diagnosis from her i stg. It would explain so much and then maybe just maybe I’ll be taken more seriously by other docs. Like seriously it would explain SO MANY of my issues like nearly all of them I stg

Who the FUCK decided that insurance companies get to decide what’s medically necessary????????