I Feel Like A Need A Brace For Every Single Mfing Joint In My Body

I feel like a need a brace for every single mfing joint in my body

So I got home to my parents place yesterday to find out that my doctors request for custom knee braces was denied by my insurance and I’m devastated. I’ve tried so many prefabricated braces and either they don’t fit or don’t do enough and because I don’t have documented loss of muscle tone or a deformity in my knees they denied it. Im majorly hypermobile and my thighs don’t fit into prefabricated braces so unless there’s like a fucking miracle prefabricated brace that I haven’t tried idk what to do. My knees slam back randomly and it hurts so bad, my knees are seriously unstable, and just overall they suck. Fuck insurance why do they get to decide what’s medically necessary

So as y’all know Ive started using crutches because of my chronic pain (and also my pots) but my mom is very dismissive of both my pain and all the other shit up with my body so I’m honestly kinda scared to go home for a couple weeks because I don’t know if I’ll feel comfortable enough to bring and actually use my mobility aids even if I just use my cane. I just really wish my parents took my pain and fatigue and etc seriously instead of just saying “you just need to workout more” or “you just need to eat better” when I know that neither of those nor the THOUSANDS of other things they suggest won’t take away the pain I’ve been in my entire life.

I just want my parents to actually care that I’m in constant pain and not make me feel guilty for using things that actually help

Also wtf is up with abled people and thinking that using mobility aids will make those of us who use them worse??? Like I’m pretty sure me being able to walk more because of my crutches is better than me barely being able to walk a couple blocks without them. (Technically I can walk further than that but it starts to get really painful at that point)

Okay, so I love sitting cross legged and it’s the most comfortable position for my body to be in except for the fact that it always makes my left leg fall asleep to the point that it’s extremely painful so I have to keep my leg out straight but that’s not comfortable and hurts other parts of me.

Does this happen to anyone else?

This shit this shit right here is so true. I know I’m still young and what not but it’s taken me YEARS of dealing with chronic pain and fatigue and what not to be able to admit even to myself that I need help and that I can’t do everything that truly able bodied people can do because I am not able bodied

The truth is most people think being disabled is a death sentence but instead of advocating for disabled people they r convinced that they’ll never become disabled as if being disabled is some biblical punishment. Guess what? Accidents happen. You will get old and your body will stop working like it used to. Imagine if we live in a world where disability is seen as normal. Where we actually take care of each other.

So, kinda adding on to my post from this morning my pain is worse than it normally is but not extraordinarily so and it’s taken till the end of today to really start to get bad so I’d say my universal trip was a success and the accommodations and crutches really helped to lower my pain yesterday and today