GIRLS

GIRLS<3

Thank you for listening.

Y’all, what’s the benefit of getting a hEDS diagnosis? Every Doc I’ve seen has brought up that I probably have it but none will actually evaluate me for it (based on the criteria to my understanding I definitely fit it) and I keep getting told there’s no point in actually getting the diagnosis so they don’t want to do the evaluation. They’ve offered genetic testing which is nice but that shits expensive and I know technically necessary for the diagnosis but if they won’t even do the in office evaluation what’s the point of it (I mean unless I have one of the other types)

Can I claim it for myself? I understand if not since I’m not formally diagnosed but I’m just curious.

MOBILITY AIDS ARE NOT FUCKING TOYS GODDAMN IT. THEY ARE NOT HERE FOR YOU TO PLAY WITH!!!

Non caps: mobility aids are not fucking toys goddamn it. They are not here for you to play with!!!!

Mobility Aids should be free.

Use seat cushions! Wear your braces! Sit on the floor if you have to! Ask for adjustments! Use your mobility aids! Take your meds (even in public)!

These things are not embarrassing. What is embarrassing is grown adults not understanding that young people can be disabled.

You can be disabled and young. Disabled and hot. Disabled and angry. Disabled and a fucking superstar. Don't let the ignorance of others stop you.

This rain is fucking terrifying holy shit wtf New York/New Jersey (i have no idea what state i’m I’m rn) wtf

Video description: heavy rain hitting windshield of a car very loudly causing Extremely low visibility with windshield wipers on