Consider-your-potatoes-mashed - Ouch

DURING DISABILITY AWARENESS MONTH?

THIS IS A SUPER SPREADER EVENT. THIS IS THE COVID VIRUS' WET DREAM TO BREED NEW SUPER VIRUSES.

LIKE "YOU GET A COVID STRAIN. AND YOU GET A COVID STRAIN. AND YOU'RE ALL GETTING DIFFERENT COVID STRAINS."

I love One Piece as much as anyone BUT WHAT THE FUCK IS THIS SHIT. LUFFY WOULD NOT WANT YOU ENDANGERING DISABLED PEOPLE LIKE THIS.

If you went to this without a mask. Don't talk to me. You're not worthy of my presence.

-fae

i feel like we dont talk enough about how distressing and disturbing memory loss issues are. forgetting what you were talking about halfway through a sentence, putting something down and instantly forgetting where you put it. having to reread one paragraph over and over again because by the time youve moved onto the next sentence you dont remember what the one before it said. always doubting if your memories of things are real, not being able to remember important life events.

its so incredibly scary, it feels like your mind is constantly playing tricks on you and you start to doubt whats real and what isnt.

“i forgot” is treated like a lazy excuse when it’s genuinely such a big issue for so many people.

More malls need to have sensory places or quiet spaces or something.

Today I was at the mall and felt on the verge of crying from over stimulation from all the people at the mall so I went into the bathroom in the hopes of a quiet space and it was quiet for a while until a family with 5 screaming children came in and yeah I understand they need the space too and kids can’t always control themselves and it’s difficult for parents to control their kids emotions and what not so it’s absolutely not their fault but goddamnit that pushed me over the edge and I wound up crying and shaking for quite a while from all of the overwhelm.

We need to have sensory safe spaces for people to access for both kids and adults

It's Disability Pride Month!! Let's talk about POTS!

Hello beautiful people. Since it's Disability Pride Month, I wanted to talk about my disability. I have a condition called POTS. It stands for Postural Orthostatic Tachycardia Sydrome, which is a very long name, and you can see why we just say POTS. Essentially, it means that when I change position or stand up, my heart rate gets too high. It is normal for your heart rate to go up when you change positions. But what makes POTS different is it changes too suddenly and much higher than average. The National Institutes of Health defines that a person with POTS has "an increase in heart rate of 30 beats/min or more when moving from a recumbent to a standing position that lasts more than 30 seconds". Which on its own doesn't sound all that bad. I would be a much happier human if that's all it was. However, POTS comes with its own host of symptoms. That swing in heart rate can cause dizziness, lightheadedness, blurred vision, and sometimes fainting. Other symptoms of POTS include:

Exercise intolerance

Headaches

Nausea

Fatigue

Anxiety

Dry mouth

Excess thirst

Leg pain

Blood pooling

Brain Fog

Swollen Extremities

Sleeping problems

Bladder problems

Digestion issues

Tremors

Shortness of breath or chest tightening

Memory issues

Poor temperature regulation

Chronic dehydration

Neuropathic pains

Increased sweating to the extremities

Loss of appetite

Light sensitivity

Dry eyes

Heart palpitations

Chest pain

Cold extremities due to poor blood flow

Heat intolerance

Hypovolemia (low blood volume)

And probably more that I've missed! Doesn't sound all that fun, and trust me, it isn't! POTS is a condition under the larger umbrella of Dysautonomia. There are several different types of dysautonomic conditions, POTS is only one of them. Here are some fun facts about POTS:

POTS effects around 0.2% of the world's population

It is most common in females, 75 to 80% of all patients are female

Though it can be diagnosed at any age, it is most commonly diagnosed between the ages of 15 and 25 (I was 19 when I got diagnosed!)

There is no cure for POTS and it's a chronic illness

Some teenagers will outgrow the condition in their 20s

The average time to diagnosis is 5 years and 11 months (took me almost a year, luckily)

According to Dysautonomia International, 25% of POTS patients are so disabled they cannot work or attend school

There is no singular cause for POTS, and many patients will likely not know what caused their condition

Research on POTS is incredibly sparse, making advocacy, treatment, and diagnosis even harder

The usual recommended treatment is increased fluid intake, increasing salt intake, wearing compression stockings, raising the head of the bed to conserve blood volume, reclined exercises like rowing, recumbent bicycle, or swimming, and a healthy diet

While there is no FDA approved medication for POTS, some medications such as beta blockers can be used to aid the condition

Though the heart is directly involved, POTS is not technically a heart condition. It is technically a nervous system disorder stemming from the autonomic nervous system

There's lots to be said about POTS! I don't think I could fit it all in one post if I tried. But if you made it this far into the post, thank you for taking the time to learn about it! Awareness is key, and the more people that know about the condition, the better we are. Happy Disability Pride Month!!

Autistic Meltdowns

Neurodivergent_lou