More Malls Need To Have Sensory Places Or Quiet Spaces Or Something.

More malls need to have sensory places or quiet spaces or something.

Today I was at the mall and felt on the verge of crying from over stimulation from all the people at the mall so I went into the bathroom in the hopes of a quiet space and it was quiet for a while until a family with 5 screaming children came in and yeah I understand they need the space too and kids can’t always control themselves and it’s difficult for parents to control their kids emotions and what not so it’s absolutely not their fault but goddamnit that pushed me over the edge and I wound up crying and shaking for quite a while from all of the overwhelm.

We need to have sensory safe spaces for people to access for both kids and adults

For Disability PRIDE Month - It’s EXTREMELY important to remember that COVID still exists.

It never went away, and it’s as dangerous as ever.

Here are some facts everyone should be aware of:

1) COVID has killed millions around the world (directly and indirectly - such as causing heart problems, for example, and then causing a lethal heart attack months later), and debilitated tens of millions, if not more, around the world in only a few years.

2) COVID can and often does cause long term effects which can last for months, years, or even a lifetime. These long term effects commonly include: fatigue, shortness of breath, loss of taste and smell, etc. - but there are countless other long term effects. Ongoing health issues that come from an infection is called “Long COVID” - and can range in severity.

3) Most people with Long COVID have reported being dismissed, and even gaslit or made fun of by family, and even medical staff. They have been told “it’s all in their head” or “not that serious”.

4) No age, gender, race, nationality, etc. is immune to COVID. ANYONE can get it. There are some groups of people, however, that are more likely than others to have more severe outcomes from an infection.

5) Herd immunity cannot be achieved with COVID, because the virus mutates every time it infects a group a people. This new mutation can dodge any immunity you have from a previous infection, and infect you again. Millions of people around the world have already had COVID multiple times - often different mutations/variants of the virus. The less often you and the people around you get COVID, the better.

6) While vaccines and boosters can prevent more severe illnesses and even death - you can still get COVID and Long COVID, even if you’ve been vaccinated. Vaccine efficacy only lasts a few months, and the vast majority of Americans are not up to date with their boosters.

7) COVID can wreck your organs and immune system, and make you more susceptible to other diseases and conditions - such as Pneumonia.

8) Since COVID is a relatively new virus, there’s still a lot not known about it; but the limited knowledge we do have on it is terrifying.

9) “Mainstream Media” doesn’t talk about COVID anymore, because society wants to pretend it doesn’t exist anymore. Lockdowns, masking, taking precautions, etc. was costing too much money and inconveniencing too many people - so the average person would rather just pretend it doesn’t exist, even though it does. Just because everyone around you thinks “COVID is over”, doesn’t mean it is. Don’t be fooled.

10) An experiment was done on lab mice: reinfecting them with COVID. By the 10th infection - all the mice were dead…

10 infections sounds like a lot, but if you’re 20 and you get 1 infection every year on average - you’re not likely to live past 30…

If you do, you’re almost guaranteed to have some from of Long COVID.

Please take COVID seriously, for yourself, and everyone around you…

7) languages are hard to learn so the fact you’ve done that is more than so many people (especially American English speakers) can say and also I don’t think I know a single English speaker who speaks “good” English it’s a MESS of a language

8) (this part goes for those who are native (English) speakers too and aren’t “good” at it it’s okay.) this language makes like no sense and the mechanics are difficult to get a handle of (especially if you have any kind of disability that inhibits language or speech or whatever) there is absolutely no reason to apologize for that but that’s not to say that if you don’t have a disability that makes it harder you have to apologize. there is never a reason to apologizing for communicating!!!!

my blog is, and always will be, a safe place for people who are not confident in their english speaking abilities. you will never be judged or mocked here.

One way to be an ally to disabled queer people:

If you want to attend a pride event, ask about their accessibility plans and policies.

Ask about their covid policies. Ask if they are accessible to mobility aid users. Ask if they will have strobe lights, if there will be bathrooms, if there is water. Make the event planners consider who they may have left out, even if the person being left out isn't you. Have your friends ask as well. Help create a demand. Help get conversations started. Help people see where things could be more accessible.

Because when we, the disabled, ask these questions? We're much more likely to get ignored, and much less likely to be heard when we raise hell.

So help us raise hell when we need it. Demand to know why your local Pride event isn't requiring masks, or is charging for water, or doesn't have wheelchair ramps, or whatever other accessibility issue you catch.

Stop leaving us behind. We need your fucking help.

DURING DISABILITY AWARENESS MONTH?

THIS IS A SUPER SPREADER EVENT. THIS IS THE COVID VIRUS' WET DREAM TO BREED NEW SUPER VIRUSES.

LIKE "YOU GET A COVID STRAIN. AND YOU GET A COVID STRAIN. AND YOU'RE ALL GETTING DIFFERENT COVID STRAINS."

I love One Piece as much as anyone BUT WHAT THE FUCK IS THIS SHIT. LUFFY WOULD NOT WANT YOU ENDANGERING DISABLED PEOPLE LIKE THIS.

If you went to this without a mask. Don't talk to me. You're not worthy of my presence.

-fae

It's Disability Pride Month!! Let's talk about POTS!

Hello beautiful people. Since it's Disability Pride Month, I wanted to talk about my disability. I have a condition called POTS. It stands for Postural Orthostatic Tachycardia Sydrome, which is a very long name, and you can see why we just say POTS. Essentially, it means that when I change position or stand up, my heart rate gets too high. It is normal for your heart rate to go up when you change positions. But what makes POTS different is it changes too suddenly and much higher than average. The National Institutes of Health defines that a person with POTS has "an increase in heart rate of 30 beats/min or more when moving from a recumbent to a standing position that lasts more than 30 seconds". Which on its own doesn't sound all that bad. I would be a much happier human if that's all it was. However, POTS comes with its own host of symptoms. That swing in heart rate can cause dizziness, lightheadedness, blurred vision, and sometimes fainting. Other symptoms of POTS include:

Exercise intolerance

Headaches

Nausea

Fatigue

Anxiety

Dry mouth

Excess thirst

Leg pain

Blood pooling

Brain Fog

Swollen Extremities

Sleeping problems

Bladder problems

Digestion issues

Tremors

Shortness of breath or chest tightening

Memory issues

Poor temperature regulation

Chronic dehydration

Neuropathic pains

Increased sweating to the extremities

Loss of appetite

Light sensitivity

Dry eyes

Heart palpitations

Chest pain

Cold extremities due to poor blood flow

Heat intolerance

Hypovolemia (low blood volume)

And probably more that I've missed! Doesn't sound all that fun, and trust me, it isn't! POTS is a condition under the larger umbrella of Dysautonomia. There are several different types of dysautonomic conditions, POTS is only one of them. Here are some fun facts about POTS:

POTS effects around 0.2% of the world's population

It is most common in females, 75 to 80% of all patients are female

Though it can be diagnosed at any age, it is most commonly diagnosed between the ages of 15 and 25 (I was 19 when I got diagnosed!)

There is no cure for POTS and it's a chronic illness

Some teenagers will outgrow the condition in their 20s

The average time to diagnosis is 5 years and 11 months (took me almost a year, luckily)

According to Dysautonomia International, 25% of POTS patients are so disabled they cannot work or attend school

There is no singular cause for POTS, and many patients will likely not know what caused their condition

Research on POTS is incredibly sparse, making advocacy, treatment, and diagnosis even harder

The usual recommended treatment is increased fluid intake, increasing salt intake, wearing compression stockings, raising the head of the bed to conserve blood volume, reclined exercises like rowing, recumbent bicycle, or swimming, and a healthy diet

While there is no FDA approved medication for POTS, some medications such as beta blockers can be used to aid the condition

Though the heart is directly involved, POTS is not technically a heart condition. It is technically a nervous system disorder stemming from the autonomic nervous system

There's lots to be said about POTS! I don't think I could fit it all in one post if I tried. But if you made it this far into the post, thank you for taking the time to learn about it! Awareness is key, and the more people that know about the condition, the better we are. Happy Disability Pride Month!!