So, Kinda Adding On To My Post From This Morning My Pain Is Worse Than It Normally Is But Not Extraordinarily

So, kinda adding on to my post from this morning my pain is worse than it normally is but not extraordinarily so and it’s taken till the end of today to really start to get bad so I’d say my universal trip was a success and the accommodations and crutches really helped to lower my pain yesterday and today

i'm sorry about your parents it sucks when the people in your life don't listen. i hope you know that no matter what others say you're the one that knows you best and you deserve to be treated well. wishing you all the best and sending love through the screen <3

Thank you so much for all of that it really means a lot to know that people are rooting for me (and others who deal with the same kind of shit as me)

I just want to know what’s wrong with my body so I can deal with it effectively. Is that really too much to ask for???

I have never felt more seen than this pallet jack makes me feel. This is what it feels like for me to be disabled. This applies to me in many ways but perhaps most literally I am physically very strong but my joints are shit so combine those two things and I come out as a pallet jack

Image/meme taken from @theconcealedweapon

me, naively hopeful: haha my heart is racing. i'm sure if i just sit still for awhile it'll stop

ID: a still from spongebob of the words "2 hours later" in pink all capital letters on a navy background with squiggly bright blue lines and pale blue flowers with cyan centers. end ID]

me, clammy and uncomfortable:

[ID: a still from spongebob of an exhausted spongebob on his knees dragging himself into the krusty crab. his eyes are heavily ringed and his mouth is slack. his legs are like noodles. end ID]

So I got home to my parents place yesterday to find out that my doctors request for custom knee braces was denied by my insurance and I’m devastated. I’ve tried so many prefabricated braces and either they don’t fit or don’t do enough and because I don’t have documented loss of muscle tone or a deformity in my knees they denied it. Im majorly hypermobile and my thighs don’t fit into prefabricated braces so unless there’s like a fucking miracle prefabricated brace that I haven’t tried idk what to do. My knees slam back randomly and it hurts so bad, my knees are seriously unstable, and just overall they suck. Fuck insurance why do they get to decide what’s medically necessary