So As Yall Know Ive Started Using Crutches Because Of My Chronic Pain (and Also My Pots) But My Mom Is

So as y’all know Ive started using crutches because of my chronic pain (and also my pots) but my mom is very dismissive of both my pain and all the other shit up with my body so I’m honestly kinda scared to go home for a couple weeks because I don’t know if I’ll feel comfortable enough to bring and actually use my mobility aids even if I just use my cane. I just really wish my parents took my pain and fatigue and etc seriously instead of just saying “you just need to workout more” or “you just need to eat better” when I know that neither of those nor the THOUSANDS of other things they suggest won’t take away the pain I’ve been in my entire life.

I just want my parents to actually care that I’m in constant pain and not make me feel guilty for using things that actually help

Also wtf is up with abled people and thinking that using mobility aids will make those of us who use them worse??? Like I’m pretty sure me being able to walk more because of my crutches is better than me barely being able to walk a couple blocks without them. (Technically I can walk further than that but it starts to get really painful at that point)

me, naively hopeful: haha my heart is racing. i'm sure if i just sit still for awhile it'll stop

ID: a still from spongebob of the words "2 hours later" in pink all capital letters on a navy background with squiggly bright blue lines and pale blue flowers with cyan centers. end ID]

me, clammy and uncomfortable:

[ID: a still from spongebob of an exhausted spongebob on his knees dragging himself into the krusty crab. his eyes are heavily ringed and his mouth is slack. his legs are like noodles. end ID]

I have a drs appointment on Tuesday to hopefully get evaluated for hEDS yay. I Hope i can get a preliminary diagnosis from her i stg. It would explain so much and then maybe just maybe I’ll be taken more seriously by other docs. Like seriously it would explain SO MANY of my issues like nearly all of them I stg

If someone loves you they will care about how your body feels. Living with chronic pain is tough, and it permeates every inch of our lives. I’m not saying the people around you have to be perfect but they should care about how their decisions can negatively affect you. Expecting you to go to events that hurt you, saying you complain too much, being entirely thoughtless in regards to how your body functions, it isn’t okay. So let’s all stop pretending it is. 

One of the most annoying things about POTS- I have a separate air conditioning unit from the rest of the house in order to keep my bedroom at the same temperature throughout the day. It's set to 80F° and has not changed at all, but I keep having to bury myself under my thick fluffy blanket and heavy bed comforter because I'm freezing- then I through it off because it's way to hot and I feel like I'm burning up- which sucks. It's like having a fever, but I very much do not have one- I checked .

To summarize my rant about the annoyances of having no body temperature regulation due to POTS- is

Temperature- no change

Body heat- burning up or freezing, switching at random

This is bs- I want a refund on my very dysfunctional body

Okay, so I love sitting cross legged and it’s the most comfortable position for my body to be in except for the fact that it always makes my left leg fall asleep to the point that it’s extremely painful so I have to keep my leg out straight but that’s not comfortable and hurts other parts of me.

Does this happen to anyone else?