Pots Flare - Tumblr Posts

POTS really gives you a skewed understanding of heart rate. Like when I sat up this morning my heart rate was at like 180 and finally (30 min later) it’s calmed down to 135 and I just said to myself “eh well that’s not too bad” keep in mind I’m still sitting. Some people I know (who don’t have POTS) would have trouble handling heart rates in the 120s- 130s and that’s just wild to me

Let this also serve as a reminder to take care of yourself and don’t push it on flare days please

Does anyone have any tips for going to Universal Studios Hollywood while disabled (chronic pain, hypermobility, pots, and autism)?

I’ll have forearm crutches but I’m not sure if that’ll be enough or what not. Also if I were to rent a chair to get around does anyone know how accessible rides are? (I wouldn’t need to be in the wheel chair in the ride or experience etc. Just maybe to get up to the loading place idk)

But seriously any help would be much appreciated

Cw: food and discussions of eating

Please let me know if I should add other CWs to this post

So every weekday I have a routine. I go to a specific dining hall on campus and I order the same 3 things every time (except when they don’t have it which causes other issues for me with the day just being wrong after that). Now I did this today but today is also a bad POTS day and it’s made me nauseous so I have a plate full of food in front of me and I just can’t get myself to eat it. Now I know I need to eat it and if I don’t eat it my day will feel off and what not. Idk what to do I also don’t want to waste the food.

I was really pushing myself for a couple weeks doing like everything all day and definitely felt it but I’ve reached a point that I can’t really do more than 1 or 2 big things a day now because I’ve pushed myself into a flare that if I want to shower that’s my activity for the day (yeah a shower is a big thing and I hate that that’s the case)