Cw: Food And Discussions Of Eating

Cw: food and discussions of eating

Please let me know if I should add other CWs to this post

So every weekday I have a routine. I go to a specific dining hall on campus and I order the same 3 things every time (except when they don’t have it which causes other issues for me with the day just being wrong after that). Now I did this today but today is also a bad POTS day and it’s made me nauseous so I have a plate full of food in front of me and I just can’t get myself to eat it. Now I know I need to eat it and if I don’t eat it my day will feel off and what not. Idk what to do I also don’t want to waste the food.

Thank you @autism_sketches

"STIMMING: What it feels like from the inside"

In the beautiful images that follow, Autistic artist & storyteller Anouk of @Autism_Sketches depicts the experiences of some of their Autistic followers on Instagram. It is so important to learn from Autistic voices. These descriptions are exquisite.

ITS THE TITTIES

Universal Studios Hollywood was an amazing experience yesterday! And honestly was super disability friendly (from my perspective at least). Accommodations were easy to get and we’re not a hassle at all!! All the staff was super nice and always made sure I would be able to ride the rides/experiences. I’m so happy that it is the way it is. Also, having my crutches was LIFE CHANGING omg sure I was in pain yesterday, but it didn’t get to a point where I couldn’t handle it and today im not in a flare which is AMAZING!!!

Tl;dr: Universal studios Hollywood was an amazing experience and super accommodating and holy shit having my forearm crutches made my life so much easier.

Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”

My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”

Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE

POTS really gives you a skewed understanding of heart rate. Like when I sat up this morning my heart rate was at like 180 and finally (30 min later) it’s calmed down to 135 and I just said to myself “eh well that’s not too bad” keep in mind I’m still sitting. Some people I know (who don’t have POTS) would have trouble handling heart rates in the 120s- 130s and that’s just wild to me

Let this also serve as a reminder to take care of yourself and don’t push it on flare days please