POTS Really Gives You A Skewed Understanding Of Heart Rate. Like When I Sat Up This Morning My Heart

POTS really gives you a skewed understanding of heart rate. Like when I sat up this morning my heart rate was at like 180 and finally (30 min later) it’s calmed down to 135 and I just said to myself “eh well that’s not too bad” keep in mind I’m still sitting. Some people I know (who don’t have POTS) would have trouble handling heart rates in the 120s- 130s and that’s just wild to me

Let this also serve as a reminder to take care of yourself and don’t push it on flare days please

PSA IF YOU WANNA HAVE A DAY WHERE WE WALK AROUND PLACES YOU GOTTA LET ME KNOW BEFOREHAND SO I DONT FORGET MY MOBILITY AID. YOU CANT JUST SAY WERE GOING TO LUNCH AND THEN HAVE ME WALK AROUND TWENTY STORES (in reality, i can do it, i’ll just not be able to focus on the task at hand because i’ll be focused on the pain i’m in)

Universal Studios Hollywood was an amazing experience yesterday! And honestly was super disability friendly (from my perspective at least). Accommodations were easy to get and we’re not a hassle at all!! All the staff was super nice and always made sure I would be able to ride the rides/experiences. I’m so happy that it is the way it is. Also, having my crutches was LIFE CHANGING omg sure I was in pain yesterday, but it didn’t get to a point where I couldn’t handle it and today im not in a flare which is AMAZING!!!

Tl;dr: Universal studios Hollywood was an amazing experience and super accommodating and holy shit having my forearm crutches made my life so much easier.

I feel seen. He’s just in there doing everything he can to get out while also screaming

It feels like there is a little man under my kneecaps trying to get out

I actually finished and turned in an essay on time last night. That’s the first time since high school that I haven’t used an extension on an essay!!!

Thank you @autism_sketches

"STIMMING: What it feels like from the inside"

In the beautiful images that follow, Autistic artist & storyteller Anouk of @Autism_Sketches depicts the experiences of some of their Autistic followers on Instagram. It is so important to learn from Autistic voices. These descriptions are exquisite.