Disabled/chronically Ill People In General Do Not Have The Same Number Of Usable Hours As Ableds. I Can't

disabled/chronically ill people in general do not have the same number of usable hours as ableds. i can't meet my friend tomorrow because i need to wash my hair, and i can't meet them the day after because i need to do a load of laundry. i can't meet them thursday because i have an important appointment on friday, and if i overdo it on thursday i'll have to cancel friday's appointment. then i can't meet them on saturday because i'll be recovering from going out on friday, if i even manage to make it out the house. the old 'we all have the same 24 hours in the day' saying does not apply to us.

having to rotate like a sardine in bed because laying in one position for too long hurts

Okay, so i'm studying marine biology in college so I have to take a general chemistry lab, I also have POTS. I have now learned that these do not mix well. The lab obviously has many safety measures that it needs to follow. When in the lab everyone has to wear a knee length lab coat, full length pants, long socks, latex gloves, safety goggles, and closed toed shoes. The dress code makes me over heat extremely quickly and makes my heart rate spike super high too. As a result I become very dizzy, light headed, and feel as though I am going to pass out. I'm terrified to pass out in the lab since we are at tall lab benches and we are working with chemicals that can have serious health effects. I told my professor, my TA, and the office for disabilities (OSD) on my campus but nothing has been helpful. I'm honestly scared to go back into the lab but the class is required for me to graduate. I don't know how i'm going to be able to do this class. I also have chronic pain and generalized hypermobility (working on getting an EDS diagnosis) and I use forearm crutches or smart crutches and knee braces which also make moving around the lab difficult.

If anyone has any suggestions on how to make this class easier please tell me or if anyone has any suggestions as for how to make the professor/osd understand

edit: I dropped the class because it’s just not worth the risk

We've reached a new layer of not respecting mobility aid users/not seeing us as people.

Today in my class I was using my wheelchair and going towards someone to ask a question. They jumped up and grabbed someone else's cane from "in my way" and began to move it. I said no it's ok, and they said something like don't worry I'll put it back. I said no again and they returned it to where it was. I asked my question and went back to my spot. The person who's cane it was was sitting right there. They could have moved it if they thought it was in my way or if I asked them to.

A minute later I heard the cane fall over. It hadn't fallen before that but of course the abled person who moved it didn't know how to balance it properly.

Don't touch people's aids. Both myself and the other disabled person were able to handle the situation if necessary, but it didn't need to be handled because there wasn't a problem.

Does anyone else feel their knees slipping(?)/moving in the joint when you bounce your leg?????? Or is this just a me thing?

I just want to not be in pain.

I just want have parts of my body not be numb.

I just want to be able to go up a flight of stairs without feeling like I’m dying.

I just want to be able to go on a walk and actually enjoy it rather than have to think about how close the next bench is.

I just want to not have so many gi issues.

I just want to not be sick all the time.

I just want to be able to go through a day and not be absolutely exhausted by the end of it.

I just want to be able to live and not have to worry about whether I’ll be able to do what I can do today tomorrow.

I just want to have a body that works right.