ITS THE TITTIES

ITS THE TITTIES

POTS really gives you a skewed understanding of heart rate. Like when I sat up this morning my heart rate was at like 180 and finally (30 min later) it’s calmed down to 135 and I just said to myself “eh well that’s not too bad” keep in mind I’m still sitting. Some people I know (who don’t have POTS) would have trouble handling heart rates in the 120s- 130s and that’s just wild to me

Let this also serve as a reminder to take care of yourself and don’t push it on flare days please

Does anyone have any tips for going to Universal Studios Hollywood while disabled (chronic pain, hypermobility, pots, and autism)?

I’ll have forearm crutches but I’m not sure if that’ll be enough or what not. Also if I were to rent a chair to get around does anyone know how accessible rides are? (I wouldn’t need to be in the wheel chair in the ride or experience etc. Just maybe to get up to the loading place idk)

But seriously any help would be much appreciated

Thank you @autism_sketches

"STIMMING: What it feels like from the inside"

In the beautiful images that follow, Autistic artist & storyteller Anouk of @Autism_Sketches depicts the experiences of some of their Autistic followers on Instagram. It is so important to learn from Autistic voices. These descriptions are exquisite.

I feel seen. He’s just in there doing everything he can to get out while also screaming

It feels like there is a little man under my kneecaps trying to get out

There needs to be like...a pain scale+ for chronic pain peeps

Like

0 - has literally never happened

1 - did you just take morphine?

2 - miracle day

3 - evening of miracle day

4 - just took a hot bath

5 - a good day

6 - sort of achy but it's not too bad

7 - something is sore, a bit tired

8 - yeah ok it kind of hurts but I can still ignore it and get stuff done. Pretty normal day.

9 - taking it more easy today, still able to get some things done slowly. It probably rained and/or is cold out.

10 - brain is more foggy, can't really ignore pain anymore, it's present but I can still move around. Need to take frequent breaks.

11 - can't really go anywhere, need to take frequent naps, maybe get one thing done. Need to use a little pain relief and coping methods.

12 - stay in bed all day except for bare necessities for survival. Using coping and pain relief methods.

13 - need help with taking care of self, in bed all day, sleeping most of the time. Using lots of coping and pain relief methods.

14 - little hard to fall asleep due to pain and discomfort. Need to use coping and pain relief methods to sleep. Some crying. Can't move except for bathroom.

15 - coping and pain relief methods not very effective but do take the edge off. Can barely make it to the bathroom. Either sleep all day or lay in bed on phone. Might also have a little cold or something and need to take extra meds.

16 - coping and pain relief methods not working, need help going to bathroom, lots of crying, can barely sleep due to pain. Can barely type on phone.

17 - too much pain to cry, can barely talk, cannot move, even with help it's hard going to the bathroom, too tired to use pain relief and coping methods, cannot even use phone. Still you know all your pain is from your illness. The worst pain your illness can cause.

18 - feel like you're dying, Also are sick separate from illness. Require medical intervention. Call your doctor.

19 - you need to go to the doctor or hospital. You have an additional illness or injury. Something is very wrong.

20 - you got fucking shot, or your leg is snapped in two. The most unbearable pain imaginable. You need to go to the emergency room. Call 911