Okay The Possible EDS And POTS Are Explaining Too Much.

Okay the possible EDS and POTS are explaining too much.

What do you mean fingers don’t bend like that?

What do you mean average heart rates don’t go from 80 to 130 from standing up?

What do you mean arms don’t turn that far?

What do you mean having to sit down so you don’t fall over is not a normal thing when you’re walking?

I’m having revelations.

Next you’re going to tell me that toes making cracking noises when you wiggle them around a bit isn’t normal. (Side note: can someone please tell me if that’s normal because I genuinely don’t know.)

thanks so much for the tag! I love being tagged!

@thesleepysystem @essentially-a-worm-on-a-string @lightning-system (/nf) and anyone else who wants to join :)

Let's create a chain!

Link here

Wervty's Murmur Chara Creator

Hi guys! Here’s some advice from a cane user on how to spot a fake cane user/disability faker!

YOU CANT

You can not spot a “fake disabled” cane user. You can not know if someone’s “really disabled”, much less by just looking at them. Here are some common misconceptions.

“Cane users always need their canes. If they walk without it or put it away when it’s inconvenient, they’re faking”: WRONG! Many cane users are what we call “ambulatory” cane users. This means they don’t always need their canes to walk. I’m an ambulatory cane user, and I experience really horrible leg pain on the daily. However, I don’t always use my cane, and when I don’t need to walk or stand a lot in a certain place I don’t use it. And when I do use it, I may lift it off the ground or carry it in places that are sandy, gravelly, or otherwise hinder my cane.

“Cane users walk abnormally without their canes, someone who walks normally without their cane is faking”: WRONG! Many ambulatory cane users can walk in a way that seems “normal”. This doesn’t mean they’re not in pain, or not “really disabled”. This just means that their condition doesn’t cause a noticeable difference in walking, and likely manifests in a different way.

“Cane users always need their cane, someone who doesn’t use their cane at home is faking”: WRONG! Cane users may not use their canes at home, because at home they may be able to do things like sit down wherever and whenever, regain more spoons, and use other mobility aids. Additionally, some ambulatory cane users only need or use their canes when they are doing something physically taxing, like going on a hike or standing in a long line.

“My cane user friend told me this person looks like they’re faking, so it must be true”: WRONG! Being a cane user doesn’t immediately make you an expert on all different conditions and experiences. Your friend does not know the random cane user walking down the street, they are going off looks and stereotypes. Disabled people are not immune to being ableist.

“They enjoy their cane too much/they’re too happy/they decorate their cane, so they can’t actually be in enough pain to need a cane” WRONG! We’re people like everyone else, and we experience positive emotions too, even if we go through a lot of pain. To me, customizing my cane is like getting a tattoo or putting streaks in my hair, it’s a way of self expression. And we deserve to be able to talk openly about our full experience, which include the parts we’re neutral or happy about.

“They’re one of those cringey teenagers who name themselves arson and like dsmp, so they’re probably faking” WRONG! Do I even have to explain why saying someone isn’t disabled because of their name and interests is messed up and also stupid? Or did you already know that and just wanted to make fun of a disabled teenager?

“They’re too young to be using a cane, so they must be faking” WRONG! there are lots of disabilities or injuries that can cause young people to need a mobility aid. For example, I use a cane for my fibromyalgia.

“They only use it in private places, and never in places where people recognize them, so they must be faking” WRONG! In a world where anyone can just randomly take out their phone, take a picture of a cane user, and post them online to be made fun of, it can be stressful to use a cane in public areas. Also, they may not want people to ask questions, or they may feel embarrassed about it.

“I saw them switch hands, so they must be faking” WRONG! There are different reasons a cane used might do this, but I’m going to use my experience as an example. My fibromyalgia is not consistent. Sometimes one leg hurts more then the other. But as I said, fibromyalgia is inconsistent, and sometimes my other leg will start to hurt more or need more support, which is when I switch hands. And when both my legs hurt equally, I may switch my hand if it’s getting too sore.

“They told me they feel like they’re faking when they use their cane, doesn’t that mean they don’t really need it?” WRONG! Imposter syndrome is strong in a lot of disabled people, especially when for a lot of our lives we were told by doctors that we were fine and just being dramatic. Anxiety is also comorbid with a lot of physically disabilities, which only strengthens this. To add to this, something that I’ve felt and seen other disabled people talk about it, when their disability aid lessens the pain, they start thinking “well I’m not in that much pain so I don’t really need it” even though the reason they’re not in that much pain is because of the aid. I know it seems dumb, but imposter syndrome can be that strong and affects disabled people a lot.

“They don’t have a diagnosis, so they must be faking” WRONG! First of all, diagnoses are expensive. On their own they’re often already expensive, but counting the tons of tests you have to take to confirm the diagnosis? Absolutely ludicrous. Some may also choose not to get a diagnosis, so that they don’t have to deal with the prejudice and setbacks of being diagnosed. Also, some people use a cane for injuries, and for stress or fatigue related pains.

These are only a few of the things I commonly hear from fakeclaimers, and I wanted to just put out a reminder that fakeclaiming hurts the disabled community much, much more than it does ableists. Next time you see someone with a cane switch hands, or someone with a wheelchair stand up, or someone with crutches put them down, before you immediately call them out to a friend, take a picture, or write a post: does your fakeclaim rely on stereotypes? Are your reasons things that apply to ambulatory aid users?

If so, just stop. Be mindful. Please.

Reflections Beyond One Could See: A Detailed Post on Subsystems

"Just like a mirror, capable of depicting a whole scene.. once shattered, it shows many other angles and views that also made the initial reflection less coherent and fragmented."

Before you proceed, this post is the continuation of the previous post , here we cover many other details and information that people had never talked about for these 4 types. If you had seen it, let's begin!

The purpose it has..

I will be talking about the type 1 and 3 first.

Subsystems can be said as a different variant, though a related form to splitting (where it popped a part off someone) which may or may not be related with the initial alter, usually more distinct/unrelated.

In general means, subsystem is emphasized as a form of splitting for the specific alter to cope from distress, or to keep functioning, that isn't involving the whole collective.

All about type 1 & 3..

A reminder that the frequency and severity of how many facets it can break off, or how easy it can create subsystems come from the alter's own stress tolerance; which means some can form them easier (like me), while some are still holding on and stable.

Type 1 - Polyfaceted Subsystem

This type happens to be inside an alter due to still having reasons of feeling intact or together, usually different sides of the same alter. This is made to understand that there might be conflict with some thoughts or views, or due to instability with no intention of rejecting its own sides of selves.. fragmenting to each facet one has, now more autonomous that makes it easier to organize/understand each facets.

(Selfmade name from Poly in Greek; and facette in French, means "many face")

The common obstacles found in this type:

Switches are not as noticeable, especially in lesser distinctions between each facets

Prone to be blurry, or struggle with communicating as the opinions are not synchronized

often causing confusion or disorientation in decision making, due to having many sides but one body trying to operate its own ways

Type 3 - Monodive Subsystem

This type happens when there has been a rejection of identity/trait, or no longer able to cope with the presence of the problem to the core, trouble moving on or trouble keeping other facets together,, so in order to adapt, it splits distinct alters that separates from the main in order to lessen the burden/symptoms. Now all independently autonomous, it may have a similar appearance or an incredibly different look along with it's personality.

(Selfmade name from Mono in Greek; and Divisus in latin, means "separated one")

The common problems found in this type:

Contrasting views and opinions, which creates difficulties finding the middle ground

Problems with gathering evidence due to compartmentalization of memories, or traits, as it is harder to identify or understand fully autonomous splits

May follow with memory loss or skill for the initial alter, if still existing, and foregoes a personality change which can be confusing/distressing

The other meaning..

Okay, now I'll talk about 2 and 4 here.

Subsystem can also be defined by a group of alters by any means, for the most frequent examples such as having the same set of roles, or origins.

Theyre different from polyfaceted and monodive as these two types of systems can extremely vary from one system to another, there is no 'general' rules or requirements and only by reason of grouping.

All about 2 & 4..

Type 2 - Tersynd Subsystem

This type is about a set of specific alters that can traverse out-of-reach innerworld regions with ease that most people couldn't access, or have a hard time reaching to the destination, even staying for a prolonged time, and especially if it needs that specific alter to bring others there. (Also knew from personal experience)

This can also be applied to communicational barriers as some can talk easier compared to others, as it might sound more distant or blurry or can't 'click' nor mediate.

(Selfmade name from Iter in latin; and Syndedemenos in greek, means "travel and connected")

How tersynd works:

It is based on the level of connectedness to a particular area of interest/origin, which is made to be a home or area for similar kinds of alters exclusively. Be it origin or roles

Other folks may not be able to enter or stay in an exclusive area due to a different purpose or off-synchronized with the intention of the area, as there is no personal significance to connect with

Barriers do not only exist in worlds, but also communication too. There might be ease of conversing with a similar group of alter than to the less connected ones as it might have different jobs/roles, thus lesser importance to interact (This can be practiced to build better communication, as the brain loves compartmentalizing and keeping alters separated for survival)

Type 4 - Neofamile Subsystem

This type is for those out there, who developed a connection, or a familiarity who all belonged from different origins,, for example, elves and vampires may not be directed by the same species but they have similarities that connects them together such as longevity and supernatural/fictional beings.

This one is rather self explanatory too.

(selfmade name from Extraneo in latin; and familia in latin, means "from outside but family")

Last words..

I hope that covers every part of what people rarely talk about in this topic, and has been informative from start to finish!

Also, what do you guys think of the names? Should we keep them or stick to "types" instead??

And thankyou for reading to the end, i tried my best to make it as compact as possible.. let me know your own subsystem experiences, or your thoughts on this topic,, i wish you all a good day <3

I can elaborate in a separate post on how to integrate subsystems for healing, just let me know

- j

anyway here's your random reminder that it's perfectly fine if you never feel love (any kind, not just romantic) and you can still be happy without love. Love isn't what makes us human and you're not a bad person or broken if you've never felt love in your life

I think the only right way to talk about the system responsibility discourse is to think of it like having roommates.

if one of your roommates is being loud and the neighbour complains, you still apologise, right?

even though you weren't the one making the noise, since you still live together, it's partially your responsibility to keep your roommates in check.

the roommate in question is still the one at fault obviously, but it's still part of your job to talk to that person and make sure it doesnt happen again