HOW

HOW

Sneak 100

Bwa?! 😍😲

today on neat hozier retweets: disappearing birds!

Me with dairy. Me with eggs. Delicious Torture. It is always worth it. It is never worth it. Hnnnnggggggg

Honestly the most mildly infuriating thing about being disabled is having the gastrointestinal capabilities of a sickly Victorian child. I ate one (1) hot chicken wing and now I'm curled up in my bed in pain. Why would God create something so delicious only to forbid me from eating it? I understand now why Eve ate the fruit of Eden. Anyway it was worth it, would do again. I do feel like my stomach is going to explode, though.

VERY IMPORTANT a dam in the Netherlands, the weerdsluis lock, is directly on a migratory path for spawning fish. They have a worker stationed there to open the door for the fish, but they can take a while to open it. So to keep the fish from getting preyed on by birds they installed a doorbell. Only, the fish don't have hands to ring the doorbell. If you go to their website, they have a LIVE CAMERA AND A DOORBELL that YOU RING FOR THE FISH when they're waiting, and then the dam worker opens the door for them! I can't express how obsessed I am with this. look at this shit. oh my god.

Please check on the fish doorbell once in a while :)

Big mood.... heat intolerance is why I can't go enjoy summer with my kids. (And sunlight/any bright light hurts my eyes soooo much)

No relaxing in the front yard while the kiddos explore their environment. At least not without another adult with me. Who can take over keeping the kids safe/monitored when I'm incapacitated.

I wanted to go to a birthday party for a friend's kid last year, and couldn't at the last minute. Why? I spent 5 minutes outside on a hot (normal) summer day and nearly fainted switching carseats/cars. I barely made it back into the house. It took from maybe 4pm that day until late afternoon/evening the NEXT DAY to recover.

She got angry. That I didn't show up when I said I would. I wanted to. I had planned to. But those 5 minutes in this heat intolerant pots body and I had no chance....

(She is one of two of my only abled friends. Both physically and mentally. She now fully understands it was due to my condition and not me disregarding her family/event on a whim. But that understanding took a long time and during which our friendship was strained bcuz how could I possibly not follow through with what I said. With what I planned.)

This shit sucks. It really does.

Shoutout to disabled people who's ability to leave the house is entirely dependent on the weather. It sucks.

I feel this so much. It's also startling that when I passed as abled and passed as neurotypical, I was treated vastly different that I am now. (Now that I stopped masking for the most part and am also quite physically disabled and on the decline) you're glanced at differently. Actually looked at differently. Treated/spoken to differently. It's so irritating.

getting disabled over a period of time is so weird, because sometimes i’ll just see something, let’s say about running, and think “i should do that!” and then i slowly realise that i can’t run anymore. i can barely even walk. it’s weird because there wasn’t one event that happened that made me like it. there wasn’t a day where i woke up and couldn’t run anymore. it was slow and gradual. and sometimes i realise how much ive lost that i didn’t even realise because it all happened so gradually. sometimes it feels like yesterday i could run and today i can’t, and sometimes it feels like forever ago that i could.