Me With Dairy. Me With Eggs. Delicious Torture. It Is Always Worth It. It Is Never Worth It. Hnnnnggggggg

Me with dairy. Me with eggs. Delicious Torture. It is always worth it. It is never worth it. Hnnnnggggggg

Honestly the most mildly infuriating thing about being disabled is having the gastrointestinal capabilities of a sickly Victorian child. I ate one (1) hot chicken wing and now I'm curled up in my bed in pain. Why would God create something so delicious only to forbid me from eating it? I understand now why Eve ate the fruit of Eden. Anyway it was worth it, would do again. I do feel like my stomach is going to explode, though.

Big mood.... heat intolerance is why I can't go enjoy summer with my kids. (And sunlight/any bright light hurts my eyes soooo much)

No relaxing in the front yard while the kiddos explore their environment. At least not without another adult with me. Who can take over keeping the kids safe/monitored when I'm incapacitated.

I wanted to go to a birthday party for a friend's kid last year, and couldn't at the last minute. Why? I spent 5 minutes outside on a hot (normal) summer day and nearly fainted switching carseats/cars. I barely made it back into the house. It took from maybe 4pm that day until late afternoon/evening the NEXT DAY to recover.

She got angry. That I didn't show up when I said I would. I wanted to. I had planned to. But those 5 minutes in this heat intolerant pots body and I had no chance....

(She is one of two of my only abled friends. Both physically and mentally. She now fully understands it was due to my condition and not me disregarding her family/event on a whim. But that understanding took a long time and during which our friendship was strained bcuz how could I possibly not follow through with what I said. With what I planned.)

This shit sucks. It really does.

Shoutout to disabled people who's ability to leave the house is entirely dependent on the weather. It sucks.

Not pots related (i dont think??? Can it hit that young???) but when I was a child in music class we all stood up to sing and immediately after standing up my vision started getting replaced by this static/blackness and i got sooo dizzy. I stared at our substitute teacher in fear as my vision tunneled onto just her then it all went black/static and I stood there horrified that I just.... couldnt see. Everyone else around me was singing and I was staring blankly with blinded horror and when she approached me and asked what was wrong I said I can't see.... and asked to go to the nurse. She didnt believe me but let me go anyway and I literally walked completely blinded down the hall holding onto the wall for guidance and of course I got to the nurse and my vision had slowly returned and I stood there looking blankly at her just.... no idea what to tell her because a little kid going to the nurse saying "i cant see but nvm i can now" just appeared to be an excuse to leave class and tbh why tf dont adults just believe kids sure some lie but cmon now....

That is a damn core traumatic memory for me 🫠

I think it's absolutely wild that you just lose your vision every time you stand up (or rather, I do) and we just carry on like that's completely normal. POTS is crazy haha.

My breakfast in bed this morning because this is all I can stomach for an actual meal.

~Tried drinking a glass of water, but aversion made me dump the 2nd half out.

~Ate two slices from the apple my son is having with his breakfast

~🫠

Question!

So, if denied mobility aids through insurance, what are other ways/routes everyone takes to acquire them? (Or do you just go without?!)

Thank you!