Disabled Community - Tumblr Posts
Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”
My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”
Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE
Y’all. Forearm crutches are fucking amazing holy shit
I’m heading to universal today and I’m SO EXCITED!!! I’ve got my crutches and my new Bat Pants (picture included). I really hope today goes well. I couldn’t find my salt pills but here’s hoping I can find salt or something if I need it. I’m going to try and get a disability pass to help avoid standing in lines for super long.
Does anyone have any tips for going to Universal Studios Hollywood while disabled (chronic pain, hypermobility, pots, and autism)?
I’ll have forearm crutches but I’m not sure if that’ll be enough or what not. Also if I were to rent a chair to get around does anyone know how accessible rides are? (I wouldn’t need to be in the wheel chair in the ride or experience etc. Just maybe to get up to the loading place idk)
But seriously any help would be much appreciated
The Nurodiversity Umbrella
Growing Up Disabled
Maybe I’ve always been this way.
Always in need of a helping hand
Always in need of more support.
Would my parents love me any more
If I was born
The way I was supposed to be
Without the pain
Without the awkwardness
Without the need?
But I grew up this way,
It’s all I’ve ever known
So why be sad
When I can be glad
That today is better than most.
@thepromptfoundry
For July 2024 we're keeping the party going here at the Prompt foundry, celebrating diversity, solidarity, and triumphs won in the fight for rights as we roll right from Queer Pride in June to Disability Pride in July with Pride 2 Disability Boogaloo!
If you use this list, please tag me here @thepromptfoundry, I’d love to see your writing and art!
Feel free to combine different days' prompts with each other, or combine them with other seasonal events! Use your OCs, your favorite characters from media, your own experiences, whatever tickles your fancy.
Respond to as many prompts as you want or as interest you, don’t worry about missing or skipping any. Remember, this is supposed to be fun!
If you have any questions or musings, check our FAQ, and if you don't find your answer, shoot me an ask.
Plain text list below the cut:
1 We’ve always been here 2 Growing up disabled 3 Mobility aides 4 Curb-cut effect 5 Memory loss 6 Dignity 7 Limb difference 8 Sensory sensitivity 9 Autonomy 10 Invisible disability 11 Family 12 Nonverbal 13 Communication 14 Deaf or Hard of Hearing 15 Support 16 Technology 17 Pain 18 Rest 19 Facial difference 20 Space for us 21 Neurological disability 22 Neurodiversity 23 Becoming disabled 24 Allergy 25 Chronic condition 26 Genetics 27 Skin difference 28 Maintenance 29 Respecting limits 30 Solidarity 31 A future for us
Have fun!
Hello & howdy! I'm Casper Oliver (he/they). A queer, disabled artist in need.
I'm working multiple jobs, but I'm still struggling to have enough for rent, therapy, medication, and pet care as I look for another job.
Goal: $800
Any bit helps!
Also, any support towards @thesperience does also help! It's the production team I'm a founder of and the more support the team gets, the more we can focus on our project creation instead of needing to search for other jobs!
hey y'all :o) i feel kinda weird making such a serious post, but my disability makes it hard to find suitable work and i would like to be able to afford housing, so i've updated my commission info & added some new things to my redbubble page!
please check these things out if you'd like, boosting also helps a whole lot!!! i appreciate you reading this far regardless:)
Friendly reminder that generally speaking
Disorder/condition/disease
DOES NOT EQUAL
Disability
“(1) Disability
The term ‘disability’ means, with respect to an individual—
(A) a physical or mental impairment that substantially limits one or more major life activities of such individual;
(B) a record of such an impairment; or
(C) being regarded as having such an impairment (as described in paragraph (3)).
(2) Major life activities
(A) In general
For purposes of paragraph (1), major life activities include, but are not limited to, caring for oneself, performing manual tasks, seeing, hearing, eating, sleeping, walking, standing, lifting, bending, speaking, breathing, learning, reading, concentrating, thinking, communicating, and working.” Source
Disability services interactions be like
ds: we can offer a support person, or home help, or some level of assistance!
me: ...but i don't want a support person?
ds: we can offer a supportive person to help you live better
me: i just said i don't want a support person
ds: we can give you home help and someone to keep you company
me: are you completely ignoring me. i want to keep what freedom i have left.
ds: we can offer support person, you can pick them, we don't chose them for y--
me: i want to stay as independent as possible!!!!!! i've already lost most of my life to my disability! i was told you'd help me find ways to be independent. having a person to help me will ruin my mental health because i hate being seen as incapable.
ds: oh.
ds: we can offer a support person!
Hey guys! For those that are interesting in helping me with my medical funds here’s my PayPal: https://www.paypal.me/tobycoolcloud?locale.x=en_US you in no way NEED to donate to me, just liking or sharing helps me. And if you want to instead of donating buy my art feel free to dm me!! All the help means so so much for me!! I’m disabled and can’t work at a part time job like most people without having meltdowns. So art is the way I’m getting the money
Is it problematic to feel proud when doing something to make stuff more accessible? Especially my posts, I feel like me adding things like adding Image ID's and similar things should be expected of everyone, but whenever I complete one I feel slightly prideful, and then guilty because even though I've never posted art anywhere before and I've never had to describe art before it is kinda the Bare Minimum of what I might be able to do. Also, I feel like even though I'm glad that people who need Image ID'S can now experience my art more easily, part of me thinks it's selfish to expect people who use Image ID'S and screen readers and the like to even enjoy my creations.
You know what? I hate how most people think I'm 100% dependant on my mobility aids. Sure I hobble around with my cane and scuttle on my crutches, but I'm not helpless. They're so surprised when they find out I don't use them at home, or that they can hurt as bad as the disability itself, or that my dependence on them is a fluid thing and changes day by day. We have this idea of how disabled people should be— bound to their aids, miserable, defenseless. These ideas only helped me reject the idea of something wrong with me longer, because I didn't look like those people. Most of the time now, I use my aids when I don't need them just because I feel like I have to look "disabled enough" for people. We've built expectations for disabilities, which is funny, cause you couldn't have picked a more unpredictable thing.
I don't expect everyone to be educated, there are so much more pressing things to worry about, but when you have a friend or family member that's disabled, the least you can do is glance at a few resources online or ask them about it. I'm just so sick of family treating this like a big deal, or nurses holding on to me like a toddler still learning to walk when I need to get on a scale, or co-workers treating my cane laying around like a reverent item i will strike them down for disgracing. It's a piece of shitty metal y'all. I don't have a sliver of trust for that thing. Complaining about how cheaply made a lot of aids are to be priced expensive is a whole other post.
I'm just saying, if there was an immediate danger, you won't see me struggling to get away. I'll have already thrown my cane at them and ran. Yes, I have a disability, but I am not weak. You think these beefy arms are for show? You think this hunk of metal I lug around is soft? You think I made it to the end of the day fighting tooth and nail just to sit down and die? I'm fucking feral, fight me.
Question!
So, if denied mobility aids through insurance, what are other ways/routes everyone takes to acquire them? (Or do you just go without?!)
Thank you!
i love you. who, you might ask? you. the wonderful person reading this because you are more than worthy of love and i am so, so sorry you were convinced you’re not. i love you and im here for you and someone should buy you an ice cream cone ♥️😚🥰
How about y'all just, let disabled people complain, instead of shut us down whenever we bring up anything shitty that's happened to us, instead of make everything about you every time?
We get shit for not being independent and on our own, for living with family members, for being unemployed, for depending on caregivers. People call us losers, leeches, burdens, lazyasses. Like, all of this happens to us all the fucking time. We literally live this.
It doesn't matter one jack bit, doesn't mean a rat's ass to us, that it hasn't happened to you. You are not what these conversations are for.
I've almost finished with training and start working independently in a week. I'm providing in home care to disabled people. At the moment I have one main client. I like her a lot and I feel really lucky.
Starting my second independent shift today (before I would have a partner as I learned on the job). Yesterday was Rough. I hope today goes smoother. In any case it's a 6 hour shift rather than 12 like yesterday. What makes it all harder is the family member who lives with my client. She stresses me out. Yesterday the one thing that worked with Hope (not her real name) was reading to her from her Bible. The family member said it was too loud and I did it too much. I get that it's her home too, and I'll try to read more quietly, for sure, but like, Hope refused *everything else*. She's essentially trapped in her body, as she's totally paralyzed on the right and has minimal use of her left. She can only say ok/no. She didn't want to shower, didn't want to leave her bed, didn't want her radio, everything was resistance and "no." I see myself as her hands and body while I'm here. What she wants, goes. But FM wants other things and I want to be on her good side, too. I just hope it gets easier as we go along, cause otherwise I can't sustain it and I'll have to ask for another client.