I Hate Waking Up And Being Ready To Just Go Back To Sleep Again. No Matter The Amount Of Sleep.

I hate waking up and being ready to just go back to sleep again. No matter the amount of sleep.

30 minutes

3 hours

13 hours

I've even pulled a 30+ before (that was due to medication mixup and was scary but anyway)

Doesn't matter. Always exhausted. Always ready to hunker down for nap/sleep. Years and years of fatigue. I barely remember what it was like to be hyper and energetic and bouncing around ready for adventures.

Now I'm only ever mentally pining for adventures knowing full well my body wouldn't let me go and if I went anyway it'd be the last anyone saw of me.

I need to interrupt this pitiful whining with the observation that my youngest's silhouette right at this moment looks like shinchan standing on the dining room chair particularly his head-cheek shape and well that's all carryon

reminder for abled people, part of being an ally to disabled people is to actually care about them enough to bother to tailor things to their needs.

care enough to plan activities that your disabled friends are able to do. care enough to plan meals that your disabled friends will be able to eat. care enough to be willing to meet them where They are, rather than being upset if they can’t meet you where You are.

things are so hard for us already. don’t make things harder and sadder for us by excluding us with your thoughtlessness.

Here’s a video so you can hear the water and the thrushes. I took it for you because you couldn’t be there. <3

(◡‿◡✿)

(ʘ‿ʘ✿) “what you say ‘bout me”

(ʘ‿ʘ)ノ✿ “hold my flower”

I made a small batch of food around 3am after taking care of my youngest who happened to wake up middle of the night. I'd set my plate down on my nightstand, gotten comfy, and passed tf out.

So now I have a cold breakfast ready and waiting 😅🫠

The water exercise is going well. Sort of? Like it has been good for my mental health to get out of the house and into water... and it's been good to get my body moving and not have my joints scream, whole body overheat, fainting, etc.

However.... holding even the lightest water weights has been really hard on my hands. They cramp up so bad and I have to put them back like ½-¾ of the way through the session. Which sucks because other than my hands, it's a great workout!!

I can alternate how I hold/move them and work everything from my arms to my core to my legs. It's such a versatile way to keep active for me and yet my HANDS...... BETRAY ME...

I've yet to figure out a way to remedy this. But I'm still determined to go every day.

One of the days they cramped so bad I almost couldn't let go of them. That was a rough day. The next day I just used the tube so I didn't have to hold onto anything. It sucked because the tube is cumbersome and not as versatile. Suggestions very welcome 🫠