Celiac Disease - Tumblr Posts
I hate being gluten free due to Celiac diseas so much, because people constantly misunderstand in one of two ways.
Either they misunderstand it as an allergy and act like I'll have an allergic reaction such as anaphylaxis.
Or they think it's completely unimportant and "just a fad."
Hi, I have celiac and have been eating gluten free since I was 5. It really sucks, and it isn't a joke.
it’s disability pride month so i want to talk about one of my least favorite stigmas around celiac disease
in lots of media, being gluten free is played as a joke or something someone is to be annoying/pretentious. the amount of times i’ve heard jokes like that is honestly disheartening.
it also doesn’t help with the general population’s belief that celiac disease/gluten sensitivities are not serious. i’ve been diagnosed with celiac disease for 3 years now, i’ve been gluten free for about 4, and it has substantially improved my quality of life. i can’t afford risking cross-contamination because it leaves me sick for days. nearly every time i have a reaction to gluten, it’s hard for me to even drink water the next day because my body is an absolute mess. i’m miserable and fatigued for days until my body heals. not to mention the long term effects that have left me unable to stand/walk around for extended periods of time because my joints are pretty weak.
being gluten free NEEDS to be taken seriously. it’s not a choice i’ve made because i’m hoping on the latest fad, its not a preference, it’s an autoimmune disorder.
so I saw that post about asexuals with gluten allergies, and as someone with celiac disease who’s on the ace spectrum, I need to know:
Hi, I'm here to talk about something people don't usually realize is a problem, and I'm counting on Tumblr's ability to actually give a shit about things sometimes to actually pay attention.
So there's this thing called Celiac disease. A lot of people have it, me included, and it's an autoimmune disorder. The way it works is simple:
I eat gluten
My body screams and eats my intestines in response.
Not a good time, as you can imagine. As a result, people with Celiac have to avoid gluten at all costs. It's not like an intolerance where you feel sick but will recover. If you have celiac and are exposed to even the slightest amount of gluten, it will cause lasting and sometimes permanent damage to your body. It's a genuinely serious disorder.
Now here's the big issue. No one gives a shit about how careful we have to be. The tiniest amount of gluten can be enough to trigger a reaction.
I cannot kiss someone who has eaten gluten recently, or else I risk cross contamination.
This isn't some gluten free fad. This isn't some diet I can cheat on, or just an intolerance that isn't serious. I can develop cancer from eating bread. Literal. Fucking. Cancer. And just the tiniest amount of gluten is enough to trigger an immune response.
People with Celiac can rarely trust any food they haven't prepared themselves. Even food labeled as "gluten free" isn't always safe. Social gatherings where people bring food are a minefield. Restaurants are a huge risk each time.
I'm a college student, I have to eat in a dining hall. I'm terrified that I won't be able to eat anything other than salad, and even that's a risk because someone may have used the crouton tongs on the broccoli.
So please, if you work in food service and someone asks if things are gluten free, please be careful and please be honest. We're putting an insane amount of trust in you just by asking for food. Use a different cutting board, make sure to wash the knife. Little things like that can save us so much stress and pain.
It's like someone being diabetic and asking for the sugar free soda instead of the regular. We're not doing this as part of a fad diet, we're being so careful about what you serve because we don't get a choice.
Thank you.
i love when people are like “Oh my god, I couldn’t possibly imagine being asexual, how sad, you’re missing so much…” Bitch!!! You know what’s sad? Being gluten intolerant. If you placed two pills in front of me right now, one which would turn me allosexual and one which would enable me to tear into a freshly-baked oven-warm olive-and-rosemary ciabatta without utterly destroying my body, it would not even be a choice. “hyuhhh-duhhhh aren’t you worried you’ll die alone” aren’t you worried i’ll just launch myself over the bakery counter in our local grocery store one day and stuff croissants in my mouth like a starving racoon til i die and the whole place has to be closed down as a health risk while they peel my bloated body off the linoleum floor? You should be
fuck marry kill bread pasta and rice go
WTF do you know how many gluten-free foods have soy in them. Like little over half, they're taking that much away from people who need to be gluten-free.
MAJOR GLUTEN-FREE FOOD RECALL 5/4/23
There has been a massive (literally millions of pounds) recall on Prosante (owned by Cargill) soy flour used in manufacturing gluten free foods due to the potential to contain more than 20ppm of gluten. This recall affects several countries, including the United States, United Kingdom, Canada, Mexico, Chile, Costa Rica, and Guatemela.
This recall is relatively new information, and the FDA hasn't listed a press release for this event yet (for now it only shows up on their weekly enforcement report, probably because it was a firm-initiated recall), but if the figures are accurate, this could have far-reaching effects across gluten free food products. A glance at Cargill's website shows this flour is mostly used in meat alternatives, but be wary of products with soy flour included until we know more.