Cfs - Tumblr Posts

no but can we talk about tumblr ios banning spoonie? That is so genuinely ableist because “spoonie” is a term that disabled and chronically ill people use to refer to themselves. Why is apple trying to surprise disabled people referring to ourselves. Wha T

yeah it’s a thing really common in chronic fatigue syndrome, if you’re regularly experiencing it to this degree you might want to see a doctor buddy

that feel when you get so tired that you can’t process any sort of TV or books or even social media but you can’t rest or nap either so you just AAAAAAAAA

i walked 15km a couple days ago over 5:40hrs through a national park, i feel sore but so good. i wouldn’t have been able to do this a year ago. ha! take that cfs and pots 🤭

i’m so happy :) (and tired lol)

this was easily my favourite place we’ve visited since leaving home 2.5 months ago

Saw this on someone else's post under #chronically ill (I'm so sorry to whoever created it, I can't remember your @)

BUT I feel it's needed here

Also other helpful things I've found

hi sharing this because my friend who goes through chronic pain told me to use this as a reference and holy shit i just didn't realize that what i am going through is not only not normal it's also like pretty fucking bad, every day i am dealing with at least 6 but there are flare up days when i experience symptom of the tier 9.

I felt like a massive fucking liar and drama queen for the longest time but sometimes i straight up have days where i can't move and i felt like a lazy bastard.

Sometimes accessibility is using an electric toothbrush

One of the best things I did for my chronic pain and ADHD was buy an electric toothbrush with a timer and an app.

This is gonna sound nuts but hear me out.

I've been repeatedly cracking jokes to my dentist, physio and therapist that that my life would be so much easier if I didn't have to stand up for two minutes while brushing twice a day (and end up skipping it because my body hurts too much - followed by getting anxious about not brushing), and my therapist had a stroke of genius (I wish I'd thought of this) and said "well, why don't you try an electric toothbrush?"

I have a crippling fear of the dentist (something about having vampire fangs and various impactions from 9-14 years, braces for 4 years, having eight might be more teeth pulled and ongoing jaw pain from early teens will do that to a bitch - also seriously? does anyone like the dentist? shout out if you do but I cannot relate) and he knows that I get overly anxious and obsessive about brushing my teeth well to avoid the dentist and fillings as much as possible. So, I listened and used my disability funding. It took a lot of back and forth to justify spending that much on a toothbrush, and I wouldn't had I not had the funding

But wowow, has it changed sm. It's easier to sit down to brush my teeth when I'm not having to put so much effort into it and my teeth feel cleaner. I'm doing a better job for the same amount of time and effort - anyone with chronic pain and fatigue understands how precious those things are... and the best bit? The app it turns the whole fiasco into a game (as long as sending notifications to remind to replace my toothbrush head and to brush). I look forward to cleaning my teeth to see if I can do better than I did yesterday. It's insane that something so simple as having a "brushing score" can hack the ADHD braincell into wanting to do it.

I dissed the app so much "why does a toothbrush ever need to be Bluetooth" I said, and now I laugh and smile to myself knowing it seriously helps.

...plus, my teeth got whiter? maybe that's the consistency from wanting to, or maybe it's the brushing, or some combination there of, but I'm not complaining!

I'm using the same amount of time and less effort, and getting a better outcome.

Sometimes accessibility doesn't look like ramps and mobility aids (though that's SO important too!), sometimes it's making things easier by finding routes that streamline your everyday routine, and being kind to yourself and allowing yourself the grace to let change, remembering that yesterday or last year's 100% may not be today's :)

Love you all 💕

My specialists keep saying I'm doing everything right

So how come am I getting worse? I hate being chronically ill.

Why can't I just turn it on and off again, or factory rest it please