I Think Some Of The Least Helpful Medical Advice Is When You Ask How You Would Know If What You're Experiencing

i think some of the least helpful medical advice is when you ask how you would know if what you're experiencing is [thing] and they say "you'd know it if you felt it." i guarantee i would not that's why i'm asking

I hate the look on able-bodied people's faces when you can't do a thing that you could do the day before. The look of disappointment, confusion, the "Oh but you could do it before. Are you SURE you can't do it?" Like yes, Brenda, I'm sure that I am in too much pain to function/move from my bed right now so going for a walk when I could move 50 feet yesterday without my cane IS too much.

You may wonder, why do some disabled people not shower often? Well, you see, showers are actually quite intense trials designed to kill us. The steam? Makes the blood in our bodies go wild, fucks up our balance and tries to make us pass out. You have to be standing or sitting. Standing is hell and sitting is a peculiar purgatory. Reaching for bottles and soap and shit requires moving The Body, which is in constant pain that will only get worse the more we move and so will the fog that envelopes our brains and impairs our thinking.

Don't even get me started on drying off. "Why don't some of you shower often" I don't know, why don't you run marathons regularly? Because it sucks and you can't, that's why.

POTS really just is like microdosing death sometimes, feels like someone clicked restart

YES not all autistic people have the same symptoms

YES autism symptoms will not present the same way in everyone

YES sometimes different autistic people will have seemingly contradictory needs

NO none of this means that it's okay to act like one autistic person being able to do something means that all autistic people should be able to do it if they just tried harder

your autistic friend who eats vegetables just fine is not a weapon to use against autistic people who struggle with vegetables. your autistic sibling who can do small talk is not a weapon to use against autistic people who can't do small talk. your high empathy autism is not a weapon to use against low empathy autistics. etc etc. what happened to "if you've met one autistic person, you've met one autistic person"

I hate having to plan my outfits around my knee braces

don’t get me wrong I love my braces and I’m so lucky to have them (it took sooooo long to get them since I needed custom ones) but damn it’s annoying too. Like finding pants to fit my thighs is hard enough but trying to find pants that fit my braces too or that my braces can fit over is so hard gahhh

Who knows maybe I’ll start posting my outfits to help me feel more comfortable and confident with them