Hi ! You ! Please Don't Blame Yourself For The Secondary Effects Of Your Disability. The Weight Changes

hi ! you ! please don't blame yourself for the secondary effects of your disability. the weight changes are not your fault. the muscle atrophy is not your fault. the malnutrition is not your fault. the new/worsening mental health condition is not your fault. the low hygiene is not your fault. none of it is your fault!

are there areas of your self care that need improvement? of course, that's true for everyone! but it's hard to be kinder to yourself when you're disabled. sometimes we downright can't do things because of our disabilities. and it all snowballs and self perpetuates. that's not a moral failing - that's scary and difficult to go through!

you don't deserve blame, ridicule, or hatred. you just have limits. you just need support. and that's, morally, neutral. it's okay. you're not doing anything wrong, and i hope things get easier soon. give yourself a little more grace, okay?

Dear New England,

Why the FUCK are you so goddamn humid. Like seriously bro chill I don’t need to be this damp ALL THE TIME. IDK bout you but if you were a anthropomorphized you wouldn’t like it either goddamn.

Sincerely,

Me- Consider-your-potatoes-mashed (and probably a hell of a lot of other people)

The fuck is up with abled people and thinking that using or having a mobility aid makes us weak? Or that our goal should be to not use them? Why can’t they just accept that using mobility aids is not a bad thing and that we use them because they help and give us more freedom? My mobility aids enable me to do so much more than I can without them and my goal is not to get rid of them or not use them or whatever my goal is to have the ability to do what I want and be independent and not be in excruciating pain. Maybe at some point I wont need my mobility aids but right now I do so idk about other disabled people but stop telling me to try to not use something that makes my quality of life so much better and stop telling me to get better soon I’m just trying my best and the fact people don’t see that is really disheartening just because I don’t fit what someone thinks i should look like or be doing to “get better” doesn’t mean they should feel free to tell me their opinions on my body and what I do to accommodate myself

Honestly this started out as a rant about ableist bullshit regarding mobility aids but it definitely applies to so much else like neurotypicals complaining about how I accommodate my autism and telling me to “just be normal” and other shit like that.

It definitely applies to more than what I’ve said here but goddamn it abled people stop policing disabled bodies and minds, stop trying to control us, stop thinking you know our bodies better than we do

Tl;dr: abled people need to stop with their bullshit and leave disabled people and their tools and accommodations and self accommodations alone. Abled people believe they know our bodies better than we do and that’s simply not true.

Y’all, what’s the benefit of getting a hEDS diagnosis? Every Doc I’ve seen has brought up that I probably have it but none will actually evaluate me for it (based on the criteria to my understanding I definitely fit it) and I keep getting told there’s no point in actually getting the diagnosis so they don’t want to do the evaluation. They’ve offered genetic testing which is nice but that shits expensive and I know technically necessary for the diagnosis but if they won’t even do the in office evaluation what’s the point of it (I mean unless I have one of the other types)

Can I claim it for myself? I understand if not since I’m not formally diagnosed but I’m just curious.

At LGA (LaGuardia airport) and sure it sucks being on crutches in such a huge airport (or any airport really) BUT they let me go through the priority lane which was super nice.

Also saw some sunflower signs regarding invisible disability which was cool too

Had a group of teens laugh at and make fun of me for walking with my cane today. Wtf y’all wtf.

Is decency not a thing? Is kindness non existent? I am just a person and sure I use a mobility aid but goddamnit that doesn’t mean you cam/should laugh or make fun of me or any other disabled person for how they walk or behave and what not