Adenomyosis - Tumblr Posts

Well. It is done. And never come back.

The uterus art belongs to: @sarahandersenpl-blog

The meme itself, with me, was made by: @dergreenninja87

Hello, just a little life sign between the scheduled postings.

Surgery was fine. I am alive.

They ripped out what shouldnt be in me.

But still a bit sleepy.

Next goal, shitting without bleeding 😬😬😬

Image Description: A man looking exited next to a panel that reads, “The doctor thinking they’ve finally found the root of my symptoms”. The same man appears in the next panel looking shocked and it reads “‘test results normal’”.

Lidocaine patches are amazing for chronic pain 💕

Today is one of those endometriosis days. Where I can't breathe without my stomach hurting. Where I've taken fucking morphine, cannabis, along with my normal concoction of medication, and have my TENS machine on as high as it goes and my pain is still at an 8/10, where I can't walk more than 10 steps without my legs giving out, where I've thrown up three times and had to choose between showering and using the toilet. Where I've got a fever and all of my limbs are jelly and shaking. Where urinating feels like forcing a burning stick into my skin. Where maybe three foods stay down and where I'm surviving on a heat pack and Disney cartoons.

I'm not even on my period yet. It's only getting worse from here.

It's not "just a period"

When I had my foot fractured in three places I placed that as a 3-4/10 on my exponential pain scale, my daily pain is a 5, and my periods easily hit 10.

Disabled young people exist.

Stop saying they don't.

Two ultrasounds later..

Confirmation we have PCO is on its way

Adenomyosis is still unclear but very likely.

Our doc hasn't seen the ultrasounds yet - radiologist commented on the number of cysts on our ovaries (15ish on one side and 23+ on the other), and that it's basically guaranteed that our gynaecologist will agree…

They looked like c h e e s e on the ultrasound.

Time to add another diagnosis to the list.

Funny to think in October 2021 our ovaries were complimented by our surgeon, as he laughed and said that they looked perfectly healthy despite PCO running in our family…. oh, what can happen in two years. Perfectly happy ovaries said 'hell no' and became swiss cheese.

we meet another specialist tomorrow

...he's the last option in our region before we've run out of clinicians who will help.

I have one appointment with him, and he made it very clear he doesn't want to see me afterwards because I already have input from a pain specialist...that pain specialist has been close to pointless.

Wish us luck!

Normalising certain things can be dangerous - especially around mental illness and physical illness. A good example of this is how period pain has been normalised.

People with periods often dismiss their pain on the basis of "everyone gets a little pain", doctors dismiss painful periods, specialists dismiss them too as it's so normalised to have painful periods where it can be a symptom of severe chronic illness; endometriosis, polycystic ovaries, adenomyosis, even kinds of gynecological cancers can present as "a painful period"

Destigmatising painful periods (and honestly, pelvic health for all people) helps to push societal acceptance and awareness of the fact that those issues exist, and allows for conversation when problems arise.

I have both adenomyosis and endometriosis!

by: Somaly

Namaste wonderful souls and dear readers, 

My husband and I have planed for having our babies over four years. Unfortunately, It did not happen as we planned. We spent two years for checking our general health, we visited general practitioner to specialist doctors. We had countless tests and consulted with our general health doctors. 

When I did not conceive first and second year, I decided to relax and focus on my future career in Australia. I enrolled to become an early childhood educator.  I was pretty busy for the whole two years. During my study periods, I still could not conceive. I was thinking maybe because of my stress and study commitments. we were not looking deeply or seriously checking into my health.

After I graduated from study, I felt released and relaxed. I decided to see my general doctor again. She asked to check on my uterus by doing hysteroscopy test. The hysteroscopy showed that I have both endometriosis and adenomyosis in August 2024. 

I have researched and read some online article and YouTube "what is adenomyosis and endometriosis?" I could understand the meaning, some treatments, and symptoms. I could not find articles on people who have both adenomyosis and endometriosis. Now I am willing to share my experience and how I overcome my illness? To everyone who might benefit and uplift for people who just found out their hidden illness as well.  For my view points,  reading some online articles could not replace from health professionals and doctors' treatments. 

These long-term health conditions hidden many years, and I only experienced having back pain during my period, in between my periods, getting tired easily, fatigue, and have difficulty to conceived babies naturally. Even-through I found out and faced some hidden illness in 2024. I still trust with Australia health system. It might cost some money and time. I am positive with healing process and journey.  

September 2024,  I am at the begging of healing journey. I visited fertility specialist and I did the Pelvic MRI Test. I just learn, accept, and be patient with my health conditions. I have personal motivation phrase "if I cannot control or change my situations, I learn to trust and flow with the universe plan." I also just trust with my body that every cells in my body is capable of healing itself. 

This write and message help me release all my emotions and any blocks in my life. I am on a journey to become healthy again, be able to conceive our babies, and live in healthy lifestyle. I become resilient because it is a choice that I make everyday. I chose to have positive mindset and ask the right questions.

 I know I could feel all kind of emotions such as pain, hurt, sad, disappointment, and regret in my life. I never forget that I have made some good progress. I have families, friends, and support communities who accept me for who I am.  My husband, families, and friends are my real supporters and protectors. I am not hidden, but when I handle many challenges and difficult emotions. I love to quiet any noise and be quiet, so I could calm my mind and relax my body. I could regain my energy and focus for next day. 

My first tip for people who just find out that they have long tern illness:

 Ask ourselves what should we do better, how can we handle with these challenge, reflect on our experiences, share our experiences, never lose hope, and never forget you are an important person in your life.

I am going to update and share my tips with you all in the future. Now I am have upcoming appointments, consult some health professionals, and I am going to share what I learn from them.

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🌟Send a lot of love, hugs, peace, miracles, and blessings to you and your family.