Chronic Illnesses - Tumblr Posts
Hawaii is my number one bucket list things of all time! I know I’m a disabled veteran with a lot of limitations (due to different chronic illnesses and mental health illnesses I have unfortunately partly due to my injuries in the military), BUT I can still have dreams and aim for them! I still love Hiking, Lighthouses, anything nature (green and blue), history, language (teaching myself Hawaiian), culture, etc etc you name it I love and Hawaii has it. Probably one of the most extraordinary places to visit! And I WILL get there one day!
Oh and for my TBB/SW friends I will DEFINITELY be wearing my TBB and Grogu aka Baby Yoda shirts lol (I have a TON of them but especially for the lateral haha).
One weird comorbidity of EDS is actually autism! People with EDS are six or seven times more likely to also have autism!
I have basically no access to care at this point because I live in hell (florida), but would *like* to see someone eventually to look into EDS and comorbidities…wtf do I do? I have no idea how to get anyone to take me seriously and I have an incredibly hard time not completely shutting down during appointments because of medical trauma and being autistic; at this point I’m thinking about making a binder with symptoms (and make a section for each area of my body, past diagnoses, research articles, etc.) but I don’t know. I just want to be taken seriously, and that’s assuming I can even get care. Right now I’m stuck with a fucking dick of an NP just because I need *someone* to prescribe my psych meds. (He also prescribed my T, which he can no longer do at this point because of FL’s new laws…he’s fighting that but I think I just may go off T at this point because I don’t really trust this man at all; I know what I’m doing with my psych meds because I’ve been on them for 6 years but need someone I feel safe with to help with my HRT.)
Reminder for disabled and sick folks, or anyone with a disabled or sick or elderly person in your home, as seasons change whether it's getting hotter or colder for you:
If your power grid is being overtaxed by too many people in your community using their air conditioners or heat, and your leaders tell you something like it's "your civic duty" to lower your AC to an unbearable and dangerous level for you (or to reduce your heat use to unbearable and dangerous levels for you), ignore them.
That's right, I said ignore your civic duty. Let the ableds who can tolerate too hot or too cold with just mild discomfort take on the burden of society for once. You may feel guilt, but you're not saving the world by courting heat stroke or freezing to death because you're more vulnerable to either.
Eco fash and eugenecists will be blocked on sight