Why The Fuck Is It So Hard For Able Bodied People To Get Their Heads Around The Fact That Specifically

Why the fuck is it so hard for able bodied people to get their heads around the fact that specifically physically disabled people are not actually accommodated most of the time?

Whether it be the inaccessibility of a building due to stairs, heavy non auto doors, ramps that are too steep, broken elevators or just non existent elevators, etc the list goes on and on. Or now public spaces that let’s say are otherwise perfectly accessible are now inaccessible to so many people because so many people refuse to wear a fucking mask when it would cause then no harm (maybe just a bit of sweat) to wear one.

The fact that abled people don’t see just how fucked up and inaccessible the world is blows my fucking mind. Just because someone “can” do something or go somewhere doesn’t mean they should have to do that or that it’s safe for them to do so. Like sure I can do stairs but holy shit by the time I’m at the top I’m in so much pain and I feel like I’m gonna pass the fuck out man.

Bottom line, the world is really fucking inaccessible and that needs to be fixed. Physically disabled people’s voices need to be listened to and not talked over by ableds who think they know what’s best for us or who think the world is perfect as it is

I absolutely fucking hate it when my parents or anyone is like “we’re just trying to help you” when in reality they’re just telling me shit I already know or are just straight up being ableist

I don’t need other people to tell me that the amount of pain I’m in isn’t normal.

I don’t need other people to tell me that I should lose weight.

I don’t need other people to tell me shit I already know about my own goddamn body.

I don’t need other people thinking they know my body better than I do.

I don’t need lectures on how using my mobility aids will hurt me in the long run. Like um excuse me these are keeping me from constant injuries and even more severe pain.

I don’t need other people to tell me I sleep too much. I fucking know that. I’m exhausted all the time and the only way to fix that is to sleep also get this I don’t feel my pain when I’m sleeping

I don’t need other people to tell me to exercise. Believe me I’m trying it just hurts too fucking much to do it regularly.

All I fucking did was tell my parents I’ve been dizzy all day because my heart rate has been up all day (thanks POTS) and they both fucking both start “talking” to me (really lecturing me) about all the shit I need to change and all the shit that they’re not comfortable with. What the fuck do you mean dad that you’re not comfortable with me being in pain??? And when I tell you that I use mobility aids to help alleviate that pain you say you’re not comfortable with that either. Who the fuck said you get to determine what’s best for me based on what makes you uncomfortable/comfortable??? It makes me, the person actually dealing with this shit (though if you asked my mom she’d say she deals with it too because I’m “an extension” of her), uncomfortable that they are imposing their opinions and ideas and feelings and ableism onto me.

Abled people do not get a fucking opinion about my goddamn body. I will take suggestions from people who actually listen to me and who have done the work and research to best help me and who aren’t obsessed with how I look to the outside world (my mom especially is obsessed with how we as a family look to the outside world absolutely obsessed and we have to be perfect and me being disabled doesn’t fit into her perfect little fantasy).

I honestly don’t even know how to engage in a productive conversation with them. They think they’re trying to have an “adult conversation” about it but when I tell them they’re not helping and that I already know everything they’re telling me and that what they see as helping me isn’t actually helping they just double down and call me out for being “immature” because I get really fucking frustrated because I’ve heard the same fucking things over and over and over again and again from them and myself and other people who quite frankly don’t get a goddamn say on my body. I told them if you think you can help tell me something I don’t already know or haven’t already tried and they just go “we’re just trying to help” like guys. You’re. Not. Helping. I’ve told you this so many times

Also this really hurt a lot more because I though my dad was more on my side than I guess he is. I thought it was just my mom who was so hell bent on being involved and giving me useless advice that quite frankly will just hurt me but nope it’s both of them and I fucking hate that.

All I wanted to do was help make dinner and now I’m alone in my room on the floor with my back against the door trying not to cry or punch something.

Also don’t get me wrong I love my parents and I’m super thankful for them but goddamn sometimes they’re so fucking infuriating

For Disability PRIDE Month - It’s EXTREMELY important to remember that COVID still exists.

It never went away, and it’s as dangerous as ever.

Here are some facts everyone should be aware of:

1) COVID has killed millions around the world (directly and indirectly - such as causing heart problems, for example, and then causing a lethal heart attack months later), and debilitated tens of millions, if not more, around the world in only a few years.

2) COVID can and often does cause long term effects which can last for months, years, or even a lifetime. These long term effects commonly include: fatigue, shortness of breath, loss of taste and smell, etc. - but there are countless other long term effects. Ongoing health issues that come from an infection is called “Long COVID” - and can range in severity.

3) Most people with Long COVID have reported being dismissed, and even gaslit or made fun of by family, and even medical staff. They have been told “it’s all in their head” or “not that serious”.

4) No age, gender, race, nationality, etc. is immune to COVID. ANYONE can get it. There are some groups of people, however, that are more likely than others to have more severe outcomes from an infection.

5) Herd immunity cannot be achieved with COVID, because the virus mutates every time it infects a group a people. This new mutation can dodge any immunity you have from a previous infection, and infect you again. Millions of people around the world have already had COVID multiple times - often different mutations/variants of the virus. The less often you and the people around you get COVID, the better.

6) While vaccines and boosters can prevent more severe illnesses and even death - you can still get COVID and Long COVID, even if you’ve been vaccinated. Vaccine efficacy only lasts a few months, and the vast majority of Americans are not up to date with their boosters.

7) COVID can wreck your organs and immune system, and make you more susceptible to other diseases and conditions - such as Pneumonia.

8) Since COVID is a relatively new virus, there’s still a lot not known about it; but the limited knowledge we do have on it is terrifying.

9) “Mainstream Media” doesn’t talk about COVID anymore, because society wants to pretend it doesn’t exist anymore. Lockdowns, masking, taking precautions, etc. was costing too much money and inconveniencing too many people - so the average person would rather just pretend it doesn’t exist, even though it does. Just because everyone around you thinks “COVID is over”, doesn’t mean it is. Don’t be fooled.

10) An experiment was done on lab mice: reinfecting them with COVID. By the 10th infection - all the mice were dead…

10 infections sounds like a lot, but if you’re 20 and you get 1 infection every year on average - you’re not likely to live past 30…

If you do, you’re almost guaranteed to have some from of Long COVID.

Please take COVID seriously, for yourself, and everyone around you…

Autistic Meltdowns

Neurodivergent_lou

Having POTS fucking sucks all the time but especially in summer omg

It’s so hot out and I feel like I’m constantly on the verge of passing out (still haven’t though so I consider myself a little lucky) it feels like I’m running a goddamn marathon

I mean like...yes, it's okay to like kids' media regardless of if you're autistic or not. No, of course your sole argument for why it doesn't deserve mockery shouldn't be "but they might be autistic". But I don't think that means we need to or should deny that there is somewhat of a connection, or that this mockery is often rooted in ableism.

Like the autistic people who stick to or fixate on children's media are not some made up stereotype, that's a real thing and there are various reasons that can happen, such as those stories being easier to understand socially, cartoon faces having more exaggerated expressions, etc. And then there are things like comorbid intellectual disabilities and other developmental disorders.

I cannot tell you how many teenagers I knew in special ed loved media that was aimed at much younger audiences. Way more than in typical mainstream classes. That's not an accident. And it's not something we should shy away from accepting or try to distance ourselves from. Like yeah of course, it's not all of us. But if you want to seriously discuss an issue of judging people for not acting how they're expected to with regards to their age, you can't deny the role of ableism against developmental disorders.