I Absolutely Fucking Hate It When My Parents Or Anyone Is Like Were Just Trying To Help You When In Reality

I absolutely fucking hate it when my parents or anyone is like “we’re just trying to help you” when in reality they’re just telling me shit I already know or are just straight up being ableist

I don’t need other people to tell me that the amount of pain I’m in isn’t normal.

I don’t need other people to tell me that I should lose weight.

I don’t need other people to tell me shit I already know about my own goddamn body.

I don’t need other people thinking they know my body better than I do.

I don’t need lectures on how using my mobility aids will hurt me in the long run. Like um excuse me these are keeping me from constant injuries and even more severe pain.

I don’t need other people to tell me I sleep too much. I fucking know that. I’m exhausted all the time and the only way to fix that is to sleep also get this I don’t feel my pain when I’m sleeping

I don’t need other people to tell me to exercise. Believe me I’m trying it just hurts too fucking much to do it regularly.

All I fucking did was tell my parents I’ve been dizzy all day because my heart rate has been up all day (thanks POTS) and they both fucking both start “talking” to me (really lecturing me) about all the shit I need to change and all the shit that they’re not comfortable with. What the fuck do you mean dad that you’re not comfortable with me being in pain??? And when I tell you that I use mobility aids to help alleviate that pain you say you’re not comfortable with that either. Who the fuck said you get to determine what’s best for me based on what makes you uncomfortable/comfortable??? It makes me, the person actually dealing with this shit (though if you asked my mom she’d say she deals with it too because I’m “an extension” of her), uncomfortable that they are imposing their opinions and ideas and feelings and ableism onto me.

Abled people do not get a fucking opinion about my goddamn body. I will take suggestions from people who actually listen to me and who have done the work and research to best help me and who aren’t obsessed with how I look to the outside world (my mom especially is obsessed with how we as a family look to the outside world absolutely obsessed and we have to be perfect and me being disabled doesn’t fit into her perfect little fantasy).

I honestly don’t even know how to engage in a productive conversation with them. They think they’re trying to have an “adult conversation” about it but when I tell them they’re not helping and that I already know everything they’re telling me and that what they see as helping me isn’t actually helping they just double down and call me out for being “immature” because I get really fucking frustrated because I’ve heard the same fucking things over and over and over again and again from them and myself and other people who quite frankly don’t get a goddamn say on my body. I told them if you think you can help tell me something I don’t already know or haven’t already tried and they just go “we’re just trying to help” like guys. You’re. Not. Helping. I’ve told you this so many times

Also this really hurt a lot more because I though my dad was more on my side than I guess he is. I thought it was just my mom who was so hell bent on being involved and giving me useless advice that quite frankly will just hurt me but nope it’s both of them and I fucking hate that.

All I wanted to do was help make dinner and now I’m alone in my room on the floor with my back against the door trying not to cry or punch something.

Also don’t get me wrong I love my parents and I’m super thankful for them but goddamn sometimes they’re so fucking infuriating

Why does so much stuff involve the use of my fucking hands?

I use crutches the majority of the time to get around cause hahaha pain and instability and what not so my hands are like always full so if i want to do something that involves my hand or both hands I have to stop moving to do it. It’s so annoying!

I mean like...yes, it's okay to like kids' media regardless of if you're autistic or not. No, of course your sole argument for why it doesn't deserve mockery shouldn't be "but they might be autistic". But I don't think that means we need to or should deny that there is somewhat of a connection, or that this mockery is often rooted in ableism.

Like the autistic people who stick to or fixate on children's media are not some made up stereotype, that's a real thing and there are various reasons that can happen, such as those stories being easier to understand socially, cartoon faces having more exaggerated expressions, etc. And then there are things like comorbid intellectual disabilities and other developmental disorders.

I cannot tell you how many teenagers I knew in special ed loved media that was aimed at much younger audiences. Way more than in typical mainstream classes. That's not an accident. And it's not something we should shy away from accepting or try to distance ourselves from. Like yeah of course, it's not all of us. But if you want to seriously discuss an issue of judging people for not acting how they're expected to with regards to their age, you can't deny the role of ableism against developmental disorders.

More malls need to have sensory places or quiet spaces or something.

Today I was at the mall and felt on the verge of crying from over stimulation from all the people at the mall so I went into the bathroom in the hopes of a quiet space and it was quiet for a while until a family with 5 screaming children came in and yeah I understand they need the space too and kids can’t always control themselves and it’s difficult for parents to control their kids emotions and what not so it’s absolutely not their fault but goddamnit that pushed me over the edge and I wound up crying and shaking for quite a while from all of the overwhelm.

We need to have sensory safe spaces for people to access for both kids and adults

Having POTS fucking sucks all the time but especially in summer omg

It’s so hot out and I feel like I’m constantly on the verge of passing out (still haven’t though so I consider myself a little lucky) it feels like I’m running a goddamn marathon

You are not gross, or bad, if you struggle with hygenine. Its okay! Last night I brushed my teeth, which was a big achievement for me! Whatever achievement you made, I'm proud of you. And if you didnt make an achievement, I'm still proud of you. I love you so much, and your ability to take care of yourself is irrelevant to that love. /p