Mystery Illness - Tumblr Posts
To long. I lay down. My ears have a feeling. Like being boxed. Maybe 3 times. Maybe a minute in between. Before my heart feels startled. Then, maybe 5 min later, a limb twitch. Months ago before that would have a sensation like my head filled up and expelled something.
And now, after eating these cannibis gummies that are supposed to be trollie worms, every now and then make a chomping movement.
Sometimes all 3 at once.
Since maybe July. T has been going on. The chomp and worm thing was from a few weeks ago.
This goes on every night multiple times a night.I thought I would try not thinking .clearing my mind, and I injured myself. Or maybe it was going from .25 to .50 resperidone. Or maybe it was space candy damage. I do not know.
I am so tired. I wonder if I have paradoxal insomnia. I’m doing a medicine reboot, so after 20 years. Am f the lamotrigine. Thinking that is why I am akways jarred
Seeing all the AI is n Facebook and the whole Israel Hamas Palestine issue and thinking. Need to ruin everyone’s day with faces do not help an anxiety. A frustrating, twitchy, thing
I’m laying there with my arm by my head and I scrape the pillowcase with my nail. The sound sends me jumping with a big flinch. Like my whole body jumps.
It's that time again. Nausia and pain. Once a month.
So it seems since July I would talk about the pain and nausea around the , 12th 13th, 2nd or 3rd.
I don't even know what doctors to see. I see the ENT on the 20th
Might be hunger nausea or rage and anxiety from reading fake disorder cringe. Might be because it’s a 3rd. Not much tmjd pain and no sternum pain.
Spent 6 days in hospital for chickenpox. Was n ER for all around pan that was from Sunday night to Tuesday morning ( autoffill wanted something about Tuesday day ordimental ). I don’t think I flinched while I had the heart monitor , but when I did not need it anymore I started flinching again. So maybe it’s anxiety based. I caved and tried a Xanax , and t knocked me out. Gave me weird vi I’d dreams and I did not like how I felt afterwards. Also when I closed my eyes I just Shaw weird tight dots that wiggle.
So wake-up with that nausea and pain. On a 24th. Hopefully crab rangoons leftovers and eating General Tso’s chicken for 2 days is not a trigger. Not sure how many times I drank melatonin sleepytime. The only sushi I had this month was the cali with eel, and then the soft shell crab
May was an 18th I think. But for many months it was a 2 and 3. 12 and 13 .
A second and 12passed. Chest pain on the 12th. I think I'm getting nauseous. Had sushi yesterday. Had white rice today.
And some pain. Keeping a diet is so hard and I fail. Keeping food journal so tireing
11 days since last. I don't poop enough so I tt bloated and it puts pressure ony stomach?
Wow. Threw up
Been 14 days no? The 4th ? Too soon.
Also sleep troubles
Less than 14. And again sep 9
So tired of this feeling sick things
The Unending Battle: Living with a Mysterious Illness
Shaina Tranquilino
December 16, 2023
Living with a mysterious illness is an experience that can only be truly understood by those who have gone through it. It is a constant roller coaster ride of uncertainty, frustration, and exhaustion. For the past 12 years, I have been plagued by this enigmatic condition that has gradually taken over my life. Today, I want to share my story and reach out to others who may be facing similar challenges.
The Journey Begins: At the age of 18, life took an unexpected turn for me. What started as occasional bouts of sickness soon escalated into a daily battle against countless symptoms. Doctors' offices, hospitals, and specialist visits became my second home as I desperately sought answers to the mystery that had consumed my existence.
A Never-Ending Cycle: Each passing year brought new ailments and symptoms that ravaged my body and mind. Insomnia robbed me of much-needed restorative sleep while low energy levels left me perpetually drained. Hot flashes and sweating made even simple tasks unbearable, while the absence of a menstrual cycle added further confusion to the equation.
Endless Symptom Burden: The laundry list of symptoms seemed never-ending. Intense stomach cramps, loss of appetite despite efforts to eat, persistent nausea, and diarrhea turned eating into a dreaded chore. My dental health deteriorated rapidly with decaying teeth becoming yet another complication.
As if these physical struggles weren't enough, black spots in my vision triggered worry while hair loss shattered my self-esteem. Mouth sores, rashes on various parts of my body including my face, eyelids, and ears, acne outbreaks - all added insult to injury.
Daily Challenges: Simple activities like swallowing food or drinks became arduous tasks accompanied by pain. Muscles and joints constantly throbbed with discomfort; every step felt like traversing treacherous terrain.
Navigating Life's Obstacles: Living with an enigmatic illness demands resilience and adaptability. Coping mechanisms became a vital part of my daily routine, helping me navigate through the darkest moments. Emotional support from loved ones and connecting with others facing similar struggles online have been invaluable sources of strength.
The Power of Connection: While this blog post is an expression of vulnerability, it also serves as a plea for connection. The internet has proven to be a powerful tool in bringing together individuals who share similar experiences. By sharing our stories, we can create a community where empathy, understanding, and knowledge thrive.
A Call for Support: To those reading this post, I humbly ask for your love and support. If you or someone you know has encountered a mysterious illness resembling the symptoms I've described, please reach out to me. Let us join forces in seeking answers, advocating for ourselves, and shedding light on these often-neglected conditions.
Living with a mysterious illness is an overwhelming experience that leaves one feeling isolated, frustrated, and exhausted. It challenges every aspect of life - physical health, mental well-being, relationships, and future aspirations. Nevertheless, by sharing our stories and uniting in solidarity, we can find solace in knowing that we are not alone in this struggle. Together, let us strive for answers while supporting each other along the way.