Gastroparesis - Tumblr Posts

1 year ago

So I was talking to myself as I am wont to do and I had just recently thrown up which is something that I do like once a week now, and I said,

" I'm sick. I have an illness. Do I know what that is?"

And then I paused for a second because I was about to say no and then I said

"yes, I do actually know what it is but I have to pretend I don't until a doctor tells me."

And I think that's the most chronically ill thing I've ever said in my entire life.


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1 year ago
Shoutout To The Chronically Ill!

Shoutout to the chronically ill!

You will find your way. Take the tube of your IVs and use them as a weapon against the very people who hurt you.

I’ve been sick since I was 14-15. Ignored by doctors and ultimately have gone through enough major surgeries, it’s affected my heart. But I keep going. I keep going not because I have to but because I choose to. I push back against the very people who have neglected and cursed me into this life just to show that no matter how much abuse I take from those with licenses to experiment on people, I stand strong. Punctured, stitched, poked, prodded.


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might I recommend a heated mattress pad? They’re great for heating your entire back and also allows you to use the heating pad elsewhere

Not enough heating pad for the ouchie so I’m just rolling around like a rotisserie chicken


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According to this article, there are 8 main types of disability. So to for disability pride month, let's have a poll!

Bonus question, what are your thoughts on this classification?


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2 years ago

What do you think?

What do you think? https://pin.it/6rbM8Pc

Kira sent you a Pin!
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I saw this super cute comic today on pinterest. I found it surprisingly helpful, especially with my gastroparesis acting up recently.

I hope someone here finds this useful!


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1 year ago

Bruh I had my dietitian appointment that I’ve been waiting 6 months for just to get told to go back to the gp bc it’s “not a food issue”

YEAH NO SHIT LADY

Literally everything I eat makes me feel sick / throw up and or other really fun bodily functions that I don’t want to even think about

I had to fill out so many forms of invasive and incredibly personal information about my body and the reactions it had, for this lady to NOT EVEN LOOK AT THEM

She saw I filled out the food diary (everything I ate made me sick / ill / uncomfortable) but told me that I will still getting the nutrients I need despite it making me so sick so I should continue doing that

The only reason that food log was filled out our properly was because I was told to, otherwise it wouldn’t be

She said that because I have nice skin (I have hEDS my skin will always look a certain way because of this condition) and the fact that I’m not malnourished (and am not underweight) that there’s nothing wrong with me

So great. I’m back to the start, triggered (she told me my weight even after I asked her not to) and told me she sees sicker people then me and therefore it’s not a food issue and I’m fine.

So yay. I’m completely fucked.

If anyone has any advice or suggestions I would love to hear them because I’m desperate at this point.


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