69constellationsinatrenchcoat - misadventures of a queer disabled DID system
misadventures of a queer disabled DID system

No, there are not 69 of us but we are hiding in a trenchcoat.. medically recognised adult DID system studying to become a clinical psych. We are aware we make mistakes, we know we make mistakes, we're open to kind discussion!!!! šŸ‡³šŸ‡æšŸ³ļøā€šŸŒˆšŸ³ļøā€āš§ļø Please remember, there is a person behind almost every post on the internet, including syscourse. Be kind.

1611 posts

Do You Have Any DID Books? Especially Fiction!!

Do you have any DID books? Especially fiction!!

Oh my gOSH I'VE BEEN WAITING FOR SOMEONE TO ASK THIS

AAAAAA, YES!!!!! Unfortunately I donā€™t have much fiction :(

Books we've read (and now own)

The Girl from the Treehouse & Beyond the Treehouse by Gudrun Frerichs (Women of our Time duo) - fiction, told from multiple perspectives in one body (MC is a DID system). Gudrun Frerichs is a retired a psychologist who worked with DID in NZ

The Girl in the Green Dress by Jeni Haynes & George Blair-West - non fiction

'I didn't know that you're only supposed to have one personality. I didn't realise that having lots of voices in your head was abnormal. But you are protecting yourself. You are protecting your soul, and that's what I did.'

All of Me by Kim Noble - non fiction

ā€œIt didn't matter that so much of what they said made logical sense- or that I couldn't find any more plausible alternatives. I didn't have multiple personalities, I just didn't - and that was that.ā€

Do You Have Any DID Books? Especially Fiction!!

We'll only buy books when we really love them; as is probably obvious by the number of sticky tabs in The Girl in The Green Dress..we've read it a lot.

I swear there were way more but they haven't been noted down and now I'm confused where they've gone šŸ˜­

Sub category: Books we read and seriously don't recommend

The Half Life of Molly Pierce by Katrina Leno

Books we want to read

We haven't had an opportunity to read these yet but would like to

When Rabbit Howls by Truddi Chase

Tonee: Life with Disassociative Identity Disorder by Robert Becker

Yet Another Alice Fallen by Clair Itey

Brain Storm: A life in Pieces by Dr Shelly Kolton

The Sum of My Parts by Olga Trujillo

An Apparently Normal Person by Bonnie R. Armstrong

Dear Little Ones series by Jade Miller

Rings of Saturn by Xyloh Yugen

The Patchwork Quilt by J. D. Clark

My Mommy has Multiple Parts by Joh Knyn

We have been working on collecting all our trauma and mental health books into one Goodreads shelf - it's taking a while but here's a link anyway

Feel free to reply or reblog with more recommendations! Weā€™re always looking for more DID books (or just general mental health or just book reccs y'all, hit us with 'em)

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More Posts from 69constellationsinatrenchcoat

*sigh* just a friendly reminder that PluralKit attaches a unique code to your system that allows anyone to look up your system - and if you look up a system on discord using pk;system [code], gives a link to all of their public system data on PKs website, which for some of you includes information on triggers, sexuality, and other things that cyberbullies may misuse.

I have been messing around with the settings as much as possible and I cannot find a way to avoid this beyond privating all alters and all system info, which many users don't do.

Even with information privated, it still seems that PK will link your discord handle with your Pluralkit user if the unique code is plugged in.

reads: this post is for anyone who uses PluralKit - we believe this is way more important than syscourse stances

Sharing as this seems to me like a breach of privacy at best, and dangerous at worst.


Tags :

HIT US wITH 'EM. GO ON.

We like answering questions.

šŸ©¼šŸ¦¼ DISABLED SYSTEMS ASK GAME!šŸ¦½šŸ¦Æ

1. Is your disability visible, invisible, or both?

2. Do you use any mobility aids? If so, what for?

3. Is there a specific alter/part/headmate that deals with pain? How do they manage it?

4. Do you experience pain variety based on whoā€™s fronting?

5. How has your disability affected you negatively? (As a system or in general)

6. Has your disability affected you positively? (As a system or in general)

7. How can people best accommodate you IRL?

8. How can people best accommodate you online?

9. What do you do to manage your pain/any advice?

10. Do you decorate your aids? (Show us if youre comfortable!)

11. Who supports you the most out-sys?

12. Fun fact about yourself?

13. Hobbies? How does your system and/or disability affect your hobbies?

14. Funny story related to being a disabled system?

15. Free question! Tell us/say/do whatever you want!

How to use this format under break!

Step 1: Reblog to your blog!

Step 2: Let your followers send in the corresponding numbers of the questions they want answered!

Step 3: Wait and answer!

disabled system asks: 1-4, 10!

1. Is your disability invisible, visible or both?

Both: invisible in the way that there appears to be nothing outwardly wrong with us (as doctors kindly keep reminding me) but visible in the way that we use mobility aids almost all the time. We wear a sunflower lanyard in public, and use a mixture of a cane, crutches and a wheelchair depending on the day.

I wish to add, as someone who has looked able bodied, and disabled in various fonts.. people donā€™t treat disabled people better if theyā€™re in a wheelchair or visibly ill, and some are arguably worse to young wheelchair users.

2. Do you use mobility aids? If so, what for?

We do! As said above. We have a mixture of issues (ranging from endometriosis to POTS to hEDS to fibromyalgia) that create.. well, a mixture of issues XD. Weā€™ll use the wheelchair on bad pain and fatigue days and carry the crutches.. or, on better days, just use the crutches to take some pressure off our knees, and aid as balance. As cool as our cane looks (photos later), we stopped using it as it was giving us pretty severe hip pain on one side from the way we had to lean to get support from it (still my fav visually though).

3. Is there a specific alter/part/headmate who fronts to deal with pain? How do they manage it?

Yes, that would be me. I split when we were very young to deal with injury, particularly blood. As our chronic pain increased, so did the amount of time I spent fronting, until I slowly became our most common fronter. Sucks though, cuz that was never meant to be my job, I was supposed to stay sitting on the sidelines only appearing to deal with first aid and other protector things. Instead, Iā€™m here, and somehow I make it everyone elseā€™s problem.

My appearance as most common fronter got us outed as a system because Iā€™m so drastically different from the common fronters of the time. {its a little more complicated than that but you get the idea}

I manage it with a combo of pain killers (including medicinal CBD, THC, and flower, pregabalin, panadol, ibuprofen, codeine and morphine amongst other thingsā€¦ happy to answer questions about any of them if youā€™re curious), dissociation, weaponised tears and sheer fucking willpowerā€¦ I wish I could say sheer fucking will was still working, but it is not very well anymore. Thereā€™s only so much one can deal with, and our pain has been getting steadily worse for the past few years with very little support (most of our illnesses have no cure, only management). Weā€™ve reached the point where our doctors and specialists arenā€™t sure what to do with us and are wondering if thereā€™s something they have missedā€¦but uh, our tests, bloods and results are coming back clean. Looking into that at the moment lol.

4. Do you experience pain variety based on whoā€™s fronting?

Oh hell, do we ever. Certain members of the system *cough* Kyle *cough* have dreadful pain tolerances - I always know when one of them is cocon because our pain skyrockets into impossible levels, even if Iā€™m trying to keep it under control. Certain other members of our sys have average pain tolerances, some age regress to cope, others just curl up in a ball and sob.. depends on the alter - and the cyclical nature of parts of our pain make it difficult to manage, and to recognise how each alter is affected. Plus, itā€™s hard to compare pain tolerances when each of us have no other/barely any frame of reference.

10. Do you decorate your aids?

YES. We use a combination of spray paint, cheap nail polish, stickers and in the case of the wheelchair, holders designed for prams and bikes (water bottle holder, clips, bells, reflective stripes etc).. aids start out super boring and for us, decorating them and making them prettier is the only way to make them tolerable. And political - if the government is going to make our life into a political ā€˜issueā€™, we will turn right back around and make them aware of our existence ;)

the pic doesnā€™t grasp it very well, but we painted the chairā€™s spokes rainbow (and they look super cool when weā€™re driving it)

Thanks to @disabled-systems for the game <33

image of a wheelchair covered in stickers, most of which are related to disability. 'tired as hell, cute as fuck' 'disabled isn't a dirty word' and 'not all disabilities are visible' are some of them
image of a manual wheelchair with rainbow spokes and a rainbow sticker in the middle of the wheel that reads 'disability pride'. the side of the chair is spray painted metallic blue, and is covered in stickers. 'sometimes i walk, sometimes i roll - ambulatory wheelchair user' 'the future is accessible' 'disability rights are human rights' are among them
a metal goose neck cane painted with nail polish in rainbow stripes. the foot of the stick has been replaced with a blue one and there is a non binary, bisexual and transgender flag painted around the clear metal part.
the back of a manual wheelchair with a teal and brown bag hanging off it

Tags :

Number 11 for disabled systems ask game

11. Who supports you most out of sys?

Our mum, 100%. Sheā€™s amazing and helps us so much with day to day life stuff as well as being an awesome friend. I do wish we didnt have to rely on her as much as we do, but such is disability life

If not our mum; our closest friends, most of whom are online (sadly, we miss them)

Thanks to @disabled-systems for the questions :)


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ok but legitimately i think the reason why kids arenā€™t taking internet safety seriously is because the people who are telling us not to put our personal information out seem so out of touch. no one acknowledges the possibility of meeting very real teenaged friends online, they always say that everyone you meet is a 40 year old white man in disguise. because they arenā€™t acknowledging things we know are true, it becomes a lot easier to dismiss the rest of what theyā€™re saying as well. internet safety lessons absolutely must keep up with the times and acknowledge the internetā€™s capacity for good if you want kids to take to heart warnings about its capacity for bad.