Me: My Pain And Fatigue And Everything Else Is Getting Worse And Doctors Still Dont Know What To Do About

Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”

My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”

Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE

Fuck my knees hurt

MRI machines low key sound like they’re saying FUCK over and over again

I’ve been at universal for 8 hours now and holy shit. Having both the accessibility pass and my crutches has been life changing!!! I haven’t had to wait super long standing in lines which, I haven’t needed to sit as much as I would otherwise, AND I’m in a lot less pain than I would be otherwise. This is fucking incredible

Being young doesn't invalidate my disabilities.

Not being productive doesn't mean I'm "careless."

Not being able to do simple hygiene doesn't make me a "gross" person.

Laying in bed all day doesn't make me "lazy,"

Being overstimulated doesn't mean I'm "too sensitive."

I’m heading to universal today and I’m SO EXCITED!!! I’ve got my crutches and my new Bat Pants (picture included). I really hope today goes well. I couldn’t find my salt pills but here’s hoping I can find salt or something if I need it. I’m going to try and get a disability pass to help avoid standing in lines for super long.

Does anyone have any tips for going to Universal Studios Hollywood while disabled (chronic pain, hypermobility, pots, and autism)?

I’ll have forearm crutches but I’m not sure if that’ll be enough or what not. Also if I were to rent a chair to get around does anyone know how accessible rides are? (I wouldn’t need to be in the wheel chair in the ride or experience etc. Just maybe to get up to the loading place idk)

But seriously any help would be much appreciated