she/they/any pronouns|| 21 || lesbian || disabled || chronic pain and hypermobility || POTS and LongCovid || autistic and adhd ||
298 posts
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More Posts from Consider-your-potatoes-mashed
Cw: food and discussions of eating
Please let me know if I should add other CWs to this post
So every weekday I have a routine. I go to a specific dining hall on campus and I order the same 3 things every time (except when they don’t have it which causes other issues for me with the day just being wrong after that). Now I did this today but today is also a bad POTS day and it’s made me nauseous so I have a plate full of food in front of me and I just can’t get myself to eat it. Now I know I need to eat it and if I don’t eat it my day will feel off and what not. Idk what to do I also don’t want to waste the food.
I actually finished and turned in an essay on time last night. That’s the first time since high school that I haven’t used an extension on an essay!!!
Me: “my pain and fatigue and everything else is getting worse and doctors still don’t know what to do about it”
My mom: “ well the problem will fix itself and you’ll get better and then it won’t matter”
Me (internally yelling in my head): THATS NOT HOW CHRONIC ILLNESS/PAIN FUCKING WORKS MOM I HAVE TO USE A CANE (AND NOW CRUTCHES) TO GET AROUND OTHERWISE ID BE STUCK INSIDE
Universal Studios Hollywood was an amazing experience yesterday! And honestly was super disability friendly (from my perspective at least). Accommodations were easy to get and we’re not a hassle at all!! All the staff was super nice and always made sure I would be able to ride the rides/experiences. I’m so happy that it is the way it is. Also, having my crutches was LIFE CHANGING omg sure I was in pain yesterday, but it didn’t get to a point where I couldn’t handle it and today im not in a flare which is AMAZING!!!
Tl;dr: Universal studios Hollywood was an amazing experience and super accommodating and holy shit having my forearm crutches made my life so much easier.